For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday, 13 March 2011

Thinking...

I know thinking is a dangerous occupation for me, but I can't help but think sometimes. I was reading back some of my clinical letters, discharge summaries and other things and one thing kept coming up, bronchial wall thickening and a lot of pain in my chest. There is also evidence of scarring and other inflammation, all connected with my asthma, but I am at the point where I want to know, once and for all, what is causing my asthma attacks and how on earth I am going to try and stop it. I guess the first stage is trying to establish to what extent this is all asthma.

What we know:

We know there is a reduction in lung function. There is a lot of expiratory wheeze and other asthma symptoms, and I do respond well to Bronchiodiolators. I have had some good results on prednisolone but it is not something we want to stay on forever. Variation in peak flow. Frequent exacerbation of asthma, getting more frequent just lately. Poor immunity.

Known Asthma triggers:

Dust mites and dander.
Stress
Excersise
Viral / Bacterial infections
Hayfever
Hormones
Smoke

Now thats all the stuff we do know, but what else is there to consider? I think myself it is down to working out what I am being triggered by and how to avoid it. I am not allergic to anything which is good, but I really want to get a methocholine challenge to see just how much of this is my asthma and how much could be something else entirely. Why am I getting so many infections? What is the effect of that?

I think it kind of helped to get this down somewhere so I could read it back or even get some other opinions on it.

Loves
Wendy xx

1 comment:

  1. Sounds like a very positive step forward to me. I hope you don't mind I passed on your blog to another young lady just diagnosed with Brittle Asthma hope she gets in touch.

    ReplyDelete

Thanks for your comment. I will review it as soon as possible!

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