For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Wednesday, 2 March 2011


OK, never sit there saying to yourself that it could always be worse... NEVER EVER EVER.... If this week gets any more annoying then I think I may end up going out there and actually doing something to someone that I would later wish to reconsider. Hense why instead, I am taking to my blog and really starting to let loose.

OK so maybe I was in the wrong for saying something over Facebook about the whole ex-band member (yes I have left the band, we decided it was for the best) and then another person got involved and of course only got not even half of the story, stuck their oar in, before actually going out to find out what was really going on (accusing me of doing just THAT of all things... I will not go in to just how hypocritical that really was, but that annoyed me further) and it resulted in me and Ant having a fully fledged screaming match down the phone.

Now I will say now that I respect Ant, he did admit that he was out of line for saying what he said to me and that he wished I'd open up some more. I have made a promise that opening up will be something I will not forget to do again. Its just hard because I don't like admitting that I have a load of shit in my life right now to myself, how the hell does anyone expect me to admit it to other people, but there you go. I think I just get so angry and hate the fact that I just can't catch a break at the moment and hearing that my health is getting worse and there is now not much that can be done about it in a primary care setting (basically it is my specialist's problem now... yeah... OK...) and yes it has gotten worse, yes I am now at that point where I am not going to get better and things just seem to be nose-diving at the moment. I have to be sedated so that I can sleep or I spend half the night crying, in pain, worrying or just generally not being well. I am constantly exhausted and everything hurts.

I can't go to the shops without getting out of puff and needing medicine. Even having a "number 2" can leave me breathless and wheezy. I have lost weight and not even tried to, but I am often so tired that I cannot eat very much at times. So I rely on what sleep I can get, when I am allowed by the guy next door, the housing officer knocking constantly or just general worries about everything else.

I am TRYING. I really am. I push myself everyday to at least do SOME of the housework, and handling everything for everyone. I do my best. I honestly and truly do. I will even have a nebuliser while hoovering if I have to, and have done in the past. Taking it to the loo with me, or using it in the bath. I know there is a buttload worse out there and I don't ever want people to think I believe I am the worst off in the whole wide world and wah wah wah but I am more unwell than I really let people see. I would LOVE to work. I would LOVE to be able to go on holiday without having to take a whole pharmacy of drugs. I would LOVE it if my handbag just contained my address book, my purse and my mobile phone instead of stuff that a Paramedic would carry.



Wendy xx

No comments:

Post a Comment

Thanks for your comment. I will review it as soon as possible!


ABG (2) acceptance (5) Adventures (1) Alphonse (2) Ambulances (5) Amusement (1) Angry (3) Animals (2) Another Day In Midgar (2) Appointment (1) Art (4) Asthma (22) Asthma Attack (12) Asthma UK (2) Awareness (2) Bad Attitudes (1) Bass (1) Benefits (3) Birthdays (3) Blogs (2) Blood Pressure (1) Books (1) Bucket List (1) Busy Day (2) Calming (1) Catherine (2) Childhood (2) Chocobo (1) Christmas (4) Cleaning (2) Close Calls (1) cold (1) Comforter (1) Compensation (2) Creativity (1) Cruelty (1) Custody (1) Cute (1) death (3) Debt (2) Depression (4) Design (1) diary (1) Disability (1) Disgust (1) Disney (1) Distraction (2) Doctors (4) documentary (1) Dr Pike (1) Dreams (1) Drugs (1) DWP (1) Dye (1) Eating Patterns (1) ESA (1) Exhaustion (3) fair share (1) family (1) Films (1) Final Fantasy 7 (5) Flu (2) Fluid (1) Food (1) Friends (7) Gaming (2) Gizmo (2) glass half full (3) goodbye (1) GP (5) guidelines (1) Guiniea Pigs (6) Guitar (1) Hair (1) happiness (6) haters (1) Help (1) HND (2) home (3) home use (1) Honesty (3) Hope (4) Hospitals (8) Housework (1) Human Nature (1) Illness (5) Infection (5) inspiration (1) Instincts (1) Joke (1) JP (2) Judy (1) Labas (1) Life (2) lost cause (1) love (1) Luke (1) Lungs (3) Lush (1) Me (2) Medication (7) Memories (1) Mike (1) Mind (1) MSN (1) Music (6) My Past (1) Nathaniel (1) Nebuliser (8) Needles (1) neglect (2) Neighbor (2) new look (2) New year (1) NHS (2) Noise (5) Omen Shadow (2) One day's supply (1) Organ Donation (1) Pain (3) Patch (1) PDSA (1) Poem (1) Positivity (1) Pred (3) quotes (1) Rachael Wakefield (1) Rachy (1) Random ideas (1) Rant (1) Recovery (7) reinvention (2) Reporting (1) Routines (1) sad (1) salmonella (1) scared (1) Sean (1) Selfishness (1) Sephiroth (4) Sephy (3) Simon's Cat (1) Sims 2 (1) Sleep (6) Sorting it Out (1) Spite (1) Steve (1) Store Room (1) success (1) Support (2) Survival (4) Tattoos (1) tears (1) Technology (1) Temparature (1) Thank You (4) The Crow (1) Therapy (1) Thoughts (1) Thrash (1) Tired (1) Toys (1) Transformers (1) Transplant (1) Veins (1) Vomiting (1) warnings (1) West Midlands Ambulance Service (2) winter (1) work (1) Year (1)