For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday 24 July 2016

Paying it Forward.

Getting over asthma attacks is one of the most exhaustive processes I know. It is hard work and it leaves you feeling like everything is a million times harder than it ought to be. I spent a lot of the first few days at home sleeping because I just felt so tired but finally calm because I was back home, in my own environment where I belong. The one thing I really didn't realise how much I appreciated until I couldn't get that was the quiet. In hospital unfortunately there are a lot of people who are demanding, especially on medical wards where patients are generally dumped while waiting for care home placements (totally wrong, but when the families don't want to take them home, where else can they go?) because they are too demanding for families, it is awful to watch, even more so when you watch a lady on the ward who as soon as she was told she was able to go, started throwing herself on the floor and refusing food or drink.

I felt for her, she just kept saying that she couldn't go home, not while she could get the care she needed there despite the doctors explaining multiple times that actually being in hospital exposes you to bugs and infections and the home is the safest place. A lot of the time, all they want is someone to sit with them or just treat them like a person. I always try to be kind and polite to people, especially when there's 6 of you and you are in a room together for an undetermined amount of time. Even if it is just by sitting with an old lady in a chair while she babbles unable to fall asleep and holding her hand or striking up a conversation with people, which usually means that most times I leave the place with new friends. I believe that being friendly and kind to others is a valuable thing, even if some people take it for granted. I don't do it for any other reason than I feel its the best way to be. Its like my own way of "paying it forward".

I came across the film "Pay it Forward" a few weeks ago and it struck me as a really interesting film with such a great message, even though the story didn't have a happy ending. It follows the story of a kid called Trevor who upon being set a social studies assignment did something incredible after meeting with a new teacher whose own misfortunes in life helped them relate to each other. Trevor lives with his alcoholic mother who works as a stripper and in a Vegas casino, she wants to make things better for the two of them but really struggles due to her own issues. Basically the assignment was to think of an idea of how to make the world a better place and set it in motion. Whilst riding home, he meets a junkie called Jerry and takes him home for a good meal and a safe place to stay, but instead of asking his new friend to pay him back, he comes up with the idea of "Pay it forward." in which after someone has done something selfless to help you, you go forward and help 3 other people in a similar way. They then go and help another 3 people and it grows in size.

Admittedly it does kind of depend on human conscience and whether people can actually do selfless things (sounds silly but there are a LOT of people out there who call themselves "social justice warriors" and just repost memes on Facebook instead of actually getting up and doing something to change the issues they "care" about) but the idea was something that I really liked.

I may not be able to fix a car or give a homeless guy a meal and safe place to sleep, but I try and offer my friends and neighbours anything they need, whether its a cup of sugar or to borrow my strimmer. I do cross stitch pictures for people and make and send cards because I want to. I want to spread beauty and kindness. I show people who ask me how to cross stitch as I feel that as a therapy it has really brought something calming in to my life, which when things were going wrong, I clung to. I don't have a lot of the material stuff but the one thing I have in spades is kindness and patience towards other people (some less than deserving of course, but hindsight is a wonderful thing and all that) . Some people test that more than others but you get that regardless of where you go and there are always people out there who are only in it for their own reasons, that's OK, because when you find out who those people are, you don't owe them anything.

In fact, in life, you don't owe anyone anything. No one truly owes you anything. The world doesn't expect of you and you shouldn't expect too much of yourself. As long as you are doing something you know isn't harming other people or is making your world a neater place to live in then fine. Personally, I like to spread the word with art and crafts. I feel that it gives a lot of positivity and can make you feel better, maybe not in a way you want but it gives you something to work forward on.

I guess the message I want to take away from all of this is to keep yourselves smiling and if you can help someone else. DO.

Loves
Wendy xx

Tuesday 5 July 2016

ARGGGHH!!!!!!!

I've been having a few rough days recently. I won't go in to too much detail as it wouldn't be appropriate and I have always tried to keep my private life as what it ought to be. Private. On another 2 week slog of antibiotics again, well halfway through but not really feeling much better. It's OK these things take a while and it was left for a month to get ingrained and deep set (because getting an appointment for the same month is like getting hen's teeth) and my bloods had indicated that there was active infection but no one took action on it, probably because like all surgeries, my doctors are overworked and under more and more pressure. The result is that sometimes, no matter how hard you try, someone will always slip through the net and unfortunately that has been me. Again. I'm annoyed but to be honest, I expected no less.

It is rather frustrating that this infection has come and gone at a constant for over 2 years and it just seems to get just under the borderlines so that treatment stops but give me a week and its like it all starts again like a vicious circle which adds more and more to the thickening and stiffening of my airways. To be honest, it makes me angry because I really just want to be better. I want to be able to breathe easy or not have to worry about the pain of my back and legs anymore. Unfortunately my health issues are mainly hereditary and that is something I really have to get to grips with as they are a part of my genes. They are a permanent thing now.

I guess it's important to keep on top of them and manage as best we can even in circumstances where it is difficult. I'm not going to lie. I do feel restricted and I do hate that I struggle with things day to day but I try as much as I can. I do try and be independent. I do try and make sure I am looking after myself and the animals as best to my ability, they are the world to me. They are like my family and they make me feel so much better about everything, even on days when I feel like I am on a low ebb. They remind me daily that I am the most important human in the world to them. During one of my more dark moods recently (I won't go in to it fully but I was feeling so down I couldn't even see straight, it happens), it was them squeaking and cuddling up to me that reminded me that I wasn't going to go anywhere. Maybe its because they know when I feel stressed or upset they know that then is the time to make me feel loved and it helps me take a huge step back from the edge, which is something you never realise just how close you are until someone or something pulls you back.

I live with bi-polar disorder, OCD, slight Aspergers as well as borderline personality (schizophrenia) and I don't see those as reasons to be ashamed of myself. Actually, having issues myself has allowed me massive amounts of empathy and I have learned to look at things from as many points of view as possible. Sometimes things can seem better if you take the time to look around. I have had to understand a lot of my thought processes and reassess myself as a person. Things have changed from where they were 6 years ago and while so much has gotten better there is the undeniable fact that there are things that aren't so good. Its not something that is anyone's fault or anything like that, its just as it is.

For now though I am going to continue to keep up the good fight against this infection, do I think I will get very far? Maybe not but at least I am still trying to make the best of it.

Loves
Wendy xx

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