For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Wednesday, 31 August 2016

A New Chapter

It's been nearly 2 weeks now since Jace moved in with me here. Its been the best 2 weeks that I have had in a long while and even though I have been quite poorly during this time, I have been contented. I think that having Jace around has helped improve my confidence to no end and I have found myself doing (and wanting to do) more than before where all I felt like I was in a cycle of eat, sleep, clean, watch TV, sleep etc. We've both been happier for the new situation and I know that this was the right step to take. We'd been planning how to do this for a while so to have finally gone and done it was like a dream coming true for us.

I know it has been a huge step for Jace and I appreciate that every day. He's chosen to live away from everything he knew back in Blackpool and I have been doing my best to make sure that he is able to find himself friends and people who he can talk to, people who share interests with us both. I won't go in to too much detail though as it isn't really my place to speculate. All I know is that he is here now and we are happier than we have been in some time, as long distance in relationships is a tough factor. We have been together for over 4 years and we had times that were harder than others (again I don't think I need to go in to too much detail here as its a private thing) and there were times when we felt helpless to stop the things going wrong.

The main thing though is that we were able to overcome those things and as a team we made a wonderful life together and this is where we are today. We live in our own little place out of the way and we are happy. Very happy. And this will only continue to get better as time goes on.

In terms of my health, things haven't been quite as rosy as this but I guess that is what you expect from a brittle asthmatic who can go from being fine one moment to not being so fine the next. This infection I have been battling for nearly 2 years (pseudomonas is a nightmare because it colonises and then you end up fighting against something that in my doctor's words "never really goes away completely, just gets weaker for a while") or maybe even longer, I don't know. I actually don't remember when it started, its been that long. Its one of those things though isn't it? But the most important thing is that I'm not doing this by myself anymore (my friends have been awesome but they can't keep watch over me for 24 hours a day) and I have someone to help me, to love me and to support me when I need it most. And Jace also has someone to make him feel the same way.

We have a simple life here. But its fun, we have plenty of things to share and things are only going to get better.

Wendy xx


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