Everything has reached a point now where things just have to change, and pretty much rapidly. I cannot be allowed to get more unwell and continuing regiments of treatments that are not working as well as they could be and I seem to be getting back to where things were previously where I was getting admitted to hospital on a more regular basis. The problem we seem to be facing is what can we do? How can we fix all of this?
A few doctors have wondered whether a Sub-Cut trial of Turbuteline would be beneficial here, and I am open to anything right now. Even if that does mean that I will have to have a needle inserted in to me on a regular basis. If it means I can have my life back and be able to go back to work, and live a normal life, I can go with that. I think right now with my health the way it is, it is shocking that I had just been left to get to this state and the doctors never knew what they could do. It is a rather frustrating thing really.
As for the housing thing, well we have submitted an appeal to Housing Benefit for the back-date we should have received back at the end of 2009. We are getting as much together as we can to get that sorted out as soon as possible as we need to get out of this accommodation. It isn't appropriate for purpose and the noise problem is really getting out of hand. We ended up calling the Police on Saturday as the noise was so loud and the vibrations were so bad that I wasn't even able to lie down without being in pain. So I was left feeling pretty miserable.
I feel a bit better than I have recently. Emotionally, I have just left a lot of this to slide off my back and pretend it hadn't bothered me. But there are days when I have to admit, it does bother me. I do feel pretty useless about the whole thing and yes it does upset me when I am reminded of my limitations or the large amounts of medication I have to take on a day to day basis, dedicating a great deal of my day to making sure that I am able to breathe and stay out of hospital. It definitely was never a life for a 23 year old woman, but I know there is way worse out there. I think sometimes when you don't feel so well, it is natural to feel pretty low in yourself, but I think the important thing is to try and stay positive, rather than get upset.
On a lighter note, I had a piece of mine published by Evergreen Nebulisers. A company whose service is dedicated to helping those who need specialised therapy to those who need it.
Evergreen Nebulisers Blog
2 years ago