For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 21 May 2012

A New Week...

A new week begins and a with it a whole new set of challenges and things to do, things to organise and things to think about. Its nice to have gone a week without being taken to the hospital (something that for me is a big win, even if it sounds like only a small one to others) and another week where I have enjoyed being part of a household where there are two of us. I love having the company around and having a reason to smile. When we need each other we are there and when I am tired or frustrated I know someone has my back.

Do I ever feel like just packing it in and giving up? I would be lying to myself and to you, my readers if I said no, I don't ever feel like that. The thing is that if I ever let that feeling get to me too much then what would I be left with other than an emptiness. There would be little to no point in carrying on with demanding medical treatments and doing my best to stay alive. Maybe I have shaken my world up a lot and realised that when Dexter Holland of the Offspring was writing the song "All I Want" he really was on to something when he said "I'm sick of not living to stay alive" and that line has been really speaking out to me.

How easy is it to let my disability take over and say "I can't because of X Y and Z" and not doing anything because I am too afraid of it. I mean when I was pottering around my garden (I do it little by little) I wasn't thinking "No... I can't" I was just smiling and saying "Yeah... I will try at least". It took 3 nebs and it took me being seriously exhausted afterwards, but I cleared and weeded the path of the garden. Its not the biggest thing to do with my day, but you know something, I sat on the path and smiled as I thought "I did that", shortly before going inside, starting the nebuliser and then sitting there trying my hardest to breathe in. It could have ended so easily with me in the back of an ambulance, but I knew how not to push myself. Knowing ones own limitations is as big a part of being disabled as actually having an illness to begin with. I know this was probably something that someone could do in minutes and it did take me a long time, but I was so proud of myself. I did that.

Its astounding that thanks to Natty, the jungle that was my garden is now starting to lose its weed and rubbish bed, When the autumn comes and we can re-seed the lawn, the real fruits of our labour will show. Next summer that bed of earth with its balding lawn that you see here, will be a lush lawn, well groomed and theres going to be a path running from the gate to the main path, made of stones. Tubs of flowers and other plants. A place where the two of us can socialise and those adorable little chaps we have in the cages will have a place to popcorn and play. We had them out in the garden today and poor Gizzy and Kadaj must have wondered where they were as they hadn't been out properly in a while. The babies were having a field day and they couldn't stop popcorning with joy. It really did warm my heart. Made everything of the last few years actually mean something. I had achieved everything I wanted to by now,.

The garden will take a while, what with my limitations and other reasons, but you know what, it will be a labour of love, between friends and extended family!

Wendy xx

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