For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 8 July 2011

A Badger Short of a Mushroom...

That seems to sum me up really doesn't it? I mean it's been nearly 4 years since I left home and I still seem to live off instant noodles, sleep at least 15 hours a day and read more books in a week than a few people would read in a lifetime. I still play computer games and I still love cookie dough ice cream. You would think after everything I would have been moulded in to something (or someone) completely different. Instead, it seems that my personality has remained unchanged down to it's core, just hidden behind different medications and masked away.

Just lately, I have been taking a lot of time out to just be well, me. Whether that is just shutting myself in my room for some quiet time, playing with my pets or just chilling out with some sewing to pass some time before I do something else. I will admit, since signing off and getting my DLA sorted, it has been nice to not to worry about money or what the next thing I have to sell to make ends meet is. It has relieved some of the pressure off me and I feel a lot less stressed out by the pressures to find a job when I knew myself that a job would not be something I could cope with. Or the depressing (and sometimes distressing) New Deal option. When I did that last year, I was promised a qualification and maybe even a job. I ended the 13 week course deflated and having my ass kicked by my asthma. It was the autumn and getting colder too so my asthma was reaching it's worst time of the year.

Every winter since I was 18, my asthma has continued to deteriorate a little more each year. This has been largely down to the rise in colds, flu and some pretty vicious bacteria from 2 places. Although I do not go to places like that anymore, that damage has already been done and is irreversible. So it has left me with about 40% of my lungs not working as well as they should be. My last lung function test was about 58% which I was obviously not happy with, where as about 4 years ago it was about 85% and my asthma was a lot easier to control. Last year, it was about 67% so there has been a significant drop, but there has been good reversibility so that is at least something.

I hope that this year that I won't suffer the chest infections that seemed never ending, the almost weekly A and E trips and the rest of it that made me feel worse about my situation.

Loves
Wendy xx

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