For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 20 June 2011

Fed Up Of Drama...

After this weekend, I can honestly HONESTLY say that there has been enough drama in my life to fuel a bad soap opera and a half. I am really past it now and think it is high time we all moved on and cut the cord to the past. The past is just that and I intend to make it my personal mission to keep it very much that way. No more hate or scornful behavior. If I don't like someone, then I don't have to talk to them or even acknowledge their existance. That is that really. No more nasty comments, snipes or any such behavior, I have a lot better things to focus on and to be honest, people who have nothing better to do than cause conflict really don't interest me. At all.

I am finally happy that I won my battle with Disability Living Allowance and I received a princely backpayment, which I spent on (as well as a load of treats for me, a reward for keeping on when things really were hard) numerous bills (mainly paying over counters and cash), Tom's birthday present and looking after the people who looked after me over the last month. I have a lot to thank my friends and extended "Family" for. Their support during all of this has been so gratefully received.

It was a battle that I had been fighting for about 6 months to a year. This battle was with the Department for Work and Pensions or DWP for short. The Disability Living Allowance system is notorious for its difficulty and the form itself is a minefield to wade through. If done properly (like mine was on my 3rd attempt) it can take up to 3 hours to complete. You have to really detail the specifics of your condition, even the things that normally you would make light of or try and see the funny side.

My appointment with DIAL (North Worcestershire) was the most draining experience I have had in my life. 3 Hours of talking to a stranger about what my illness is like and what I have to do to be able to cope and it is absolutely staggering. I left the appointment subdued and almost in tears because it was that hard going. Things which I hadn't given a second thought were now things that I had been considering more and more as time went on.

It is good that the people I care about and know me well do not look down on me or my situation harshly, in particular on the issue on me getting the flat when the relationship ended. Anyone who does judge me either doesn't matter or were not true friends so they do not matter to me, I do not need people who make those kind of judgements without knowing the full story really aren't worth my time. The people who looked out for me and supported me throughout this are wonderful and I could never ask for better friends, nor a better and more wonderful man in my life.

Tom is so caring and kind, so different to what I am used to. He makes me feel confident and self assured. I smile and laugh so much more now and I feel more alive than I have in a long time. I have had the confidence to try an old look I used to have back in my teens (complete with a pageboy fringe (Thank you mother) ) I have had my hair re-dyed and braided so it looks awesome.


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