My Journey... every step of the way.: Face Each Day...

For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Thursday 23 June 2011

Face Each Day...

Just lately, I have been so much brighter and happier as a person. I mean I have finally managed to sort my own life out and it's so weird, I feel like I am 23 and not a pensioner. Even if I am feeling a bit crap today and have to see the doctor at 3. I would be lying if I said I was in a good, can be bothered, sort of place, but I know that the problems I need to see him about are things that really won't go away in a hurry on their own and it would be foolish of me to not get things seen to.

Its all the usual suspects really, hacking cough, cold sweats and coughing up gunk that seems to match the colour of an X-box game box perfectly. Add in a rash on my hands that is driving me up the wall and a sore back which makes walking a painful prospect. My peak flow was below 200 l/min and my body feels just drained and tired which would suggest to me that the stress of everything that happened recently could have run me down and infection, as it always seems to, has set in.

As always however, I am refusing to let the person, who has caused all of the stress and the rest of it, win and get me down. I refuse to let them hurt me or get to me anymore and they should never have gotten to me in the first place. I'm better than that. Maybe I am just over thinking the whole thing and thats how he is getting to me.

I guess today is one of those days where I need to really kick myself in to gear and stop worrying. I know the doctor will be glad to catch up with me and make sure everything is OK. My worry about the pred thing is probably unfounded and he will probably help me with it. I mean it has been a time of major stress and I have suffered as a result. My peak flow is frankly crap and I have been hitting the nebuliser more than I would care to admit to myself and this rash on my hand is maddening. I woke up at 5 this morning because it was itching and sore. Then proceeded to cough and wheeze for a while, so I think this is a good time to get help.

I'll probably post again when I know more and my heads a little less... well... muddled.

Loves
Wendy xx

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So, what is this blog?

This is a blog about my life and what I do. Sometimes its witty and others it can be quite serious, but I feel that sometimes the steps you take in life are the building blocks for the future. I try and at least keep a positive outlook on things because sometimes that can be enough to get you through. So, come and delve in to this crazy, spontaneous and sometimes scary world of mine.

Named as one of Healthline's best Asthma blogs of 2013, 2014, 2015 AND 2016.