For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Friday 3 December 2010

Waking up, the morning after the night before...

Last night was probably the icing on the shit-cake that was the last week. If I had ever cried that much over something, I'll be surprised. I was tired, in pain and just wanted to sleep. Steve was in one all day yesterday, and when I found out what it was that made him stress me out like that, I couldn't have him near me for a while so I asked him to leave, followed with verbal abuse and being told that I was uncaring (OK for someone who didn't care, I managed to sob myself in to more pain). Then I got when I needed, remorse. True remorse from someone who never realised what they were doing until it got to that point.

The good news is we talked and decided to carry on together, but we are no longer engaged. We got engaged way too quickly and it really was a bad idea for me to enter this. I was dumb, and I followed my heart too far, ignoring my head.

I slept OK in the end, but had a searing headache behind my temples, to contend with the pain in my sides and chest because my lungs have fluid inside them. This is a very unpleasant prospect and its hard because its left me exhausted and I just want to fall asleep and stay there for a while and being comfortable and content. I get sick of pain sometimes I think, even if I pretend that it's OK and I'm surviving, but right now I am so weak, I can't even get the strength to cough and shift what it is thats in there. So right now I am having a neb of saline solution and getting what rest is permissible. Next door has woken me up once or twice today and its left me somewhat cranky and tired.

Here's hoping really, for the comfortable rest and shifting this myself, or I will have to face the alternative, having it drained off for me. I really don't want this as it is painful and would mean a long stay in hospital. Just before Christmas as well.

Much Love
Wendy x

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