For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 24 December 2010

A great night of music... followed by a not so fun night....

Last night's gig was a great laugh, even if we had our share of set-backs, although it was nothing on what happened to Labas! who had to endure 2 power cuts, a fire alarm and a few other things. However they like many other good showmen, (and women respectively) they managed to entertain and put on a show. The guys were awesome, and had such a laugh.

The other band that played last night was a band called "The Nightmare Circus" another great band and set of guys, I got talking to them after the show, they enjoyed our set, and we enjoyed theirs, so that is a definate plus. It is a great chance to find other local bands and set up a link, if you can network with enough people at a gig, it will practically guarantee that you will be asked to support again in the future. As for me, after the set, I was networking with as many different people, from bands, to audience members, and I was given some incredible opportunities, but as one of them is a secret from John to the rest of Labas! I will keep my gob shut for now.

We played well, other than a few slip-ups, a flying nebuliser and my puffers deciding that at the last song they REALLY didn't want to know, so after a few nebs and a rest, I decided that I needed to get my tight-laced corset off. After that, I enjoyed my night, talked with friends and was genuinely back to where I was 2 years ago, even with limitations.

Roll around to bedtime, the story was a little less than rosy. I was up until 5 this morning nebbing every 20 minutes and struggling to keep peak flow up past the 200 l/min mark. I probably should have gone in, but with the snow outside, and ambulances struggling as it is, I decided to persevere until morning and if no better call GP for guidance. Luckily around 5, things had calmed down enough so I could get some sleep, which really helped me recover a bit. That was until upstairs decided that it was appropriate to play their dance music at such a volume that everyone in the 16 - 24 flats around them could hear them and they were getting seriously annoyed. Next door originally thought it was us, until we showed him where it was coming from.

Unfortunately, the situation stands that I have had 4 hours sleep, and I have no idea what my peak flow is yet, not felt brave enough to have a go at it... if I need to neb more regularly than every hour today then I will have to go in, no questions asked.

I will take this chance here and now to wish you all a VERY Happy Christmas and a Safe, Prosperous New Year.

Stay Safe

Wendy x

1 comment:

  1. How are you doing, Wendy? Have you managed to get through without going in? I hope so, but don't push it if you're struggling.


Thanks for your comment. I will review it as soon as possible!


ABG (2) acceptance (5) Adventures (1) Alphonse (2) Ambulances (5) Amusement (1) Angry (3) Animals (2) Another Day In Midgar (2) Appointment (1) Art (4) Asthma (22) Asthma Attack (12) Asthma UK (2) Awareness (2) Bad Attitudes (1) Bass (1) Benefits (3) Birthdays (3) Blogs (2) Blood Pressure (1) Books (1) Bucket List (1) Busy Day (2) Calming (1) Catherine (2) Childhood (2) Chocobo (1) Christmas (4) Cleaning (2) Close Calls (1) cold (1) Comforter (1) Compensation (2) Creativity (1) Cruelty (1) Custody (1) Cute (1) death (3) Debt (2) Depression (4) Design (1) diary (1) Disability (1) Disgust (1) Disney (1) Distraction (2) Doctors (4) documentary (1) Dr Pike (1) Dreams (1) Drugs (1) DWP (1) Dye (1) Eating Patterns (1) ESA (1) Exhaustion (3) fair share (1) family (1) Films (1) Final Fantasy 7 (5) Flu (2) Fluid (1) Food (1) Friends (7) Gaming (2) Gizmo (2) glass half full (3) goodbye (1) GP (5) guidelines (1) Guiniea Pigs (6) Guitar (1) Hair (1) happiness (6) haters (1) Help (1) HND (2) home (3) home use (1) Honesty (3) Hope (4) Hospitals (8) Housework (1) Human Nature (1) Illness (5) Infection (5) inspiration (1) Instincts (1) Joke (1) JP (2) Judy (1) Labas (1) Life (2) lost cause (1) love (1) Luke (1) Lungs (3) Lush (1) Me (2) Medication (7) Memories (1) Mike (1) Mind (1) MSN (1) Music (6) My Past (1) Nathaniel (1) Nebuliser (8) Needles (1) neglect (2) Neighbor (2) new look (2) New year (1) NHS (2) Noise (5) Omen Shadow (2) One day's supply (1) Organ Donation (1) Pain (3) Patch (1) PDSA (1) Poem (1) Positivity (1) Pred (3) quotes (1) Rachael Wakefield (1) Rachy (1) Random ideas (1) Rant (1) Recovery (7) reinvention (2) Reporting (1) Routines (1) sad (1) salmonella (1) scared (1) Sean (1) Selfishness (1) Sephiroth (4) Sephy (3) Simon's Cat (1) Sims 2 (1) Sleep (6) Sorting it Out (1) Spite (1) Steve (1) Store Room (1) success (1) Support (2) Survival (4) Tattoos (1) tears (1) Technology (1) Temparature (1) Thank You (4) The Crow (1) Therapy (1) Thoughts (1) Thrash (1) Tired (1) Toys (1) Transformers (1) Transplant (1) Veins (1) Vomiting (1) warnings (1) West Midlands Ambulance Service (2) winter (1) work (1) Year (1)