For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 2 July 2013


Its funny how we learn things as we go through life. Some of us learn big life lessons at a young age. Others don't learn the most important things until they die. It just depends on what you learn and when. I'm quite a fast learner so I only need to see something once before attempting it myself.

This is most true of my hobby of tinkering. I think I get it from my biological father who was always dismantling something or other (usually car or motorbike engines) and I used to enjoy watching. I soon started picking things up and was soon trying to test my knowledge and curiosity with old toys.

Not a lot has changed as I moved from childhood to adulthood. I just got more complex toys to take apart. My laptop is something of an ongoing project. It always wants/needs some kind of maintenance. From diagnostic scans to more complex rebuilds. Usually its a clog in the cooling system or sometimes it's a part that needs replacing.

I'm becoming adept at doing the job myself. Heck if anyone gave me a Toshiba Satellite L500 series with a problem, you can bet your ass that within the day I would be able to diagnose and maybe treat the problem. To the best of my ability anyway. Its a hobby and something useful.

I owe my brother Richard and my first boyfriend Mike for what I know about these machines. The funny thing is that I don't think they meant to teach me these things but never really stopped my observant nature and ability to retain and use information as well as the common sense to adapt what I was doing.

I enjoy learning in all forms. Whether its reading up on things or watching another work, asking questions and then experimentation. Obviously I don't do the kind of experiments to cause pain or suffering to others, I prefer the approach of "It's great as it is, but can I make it better? If so, how?" Besides, my "subjects" are strictly technological.

Although I have a very good understanding of the human body and my conditions, I would never dream to be as foolish as to try and diagnose or treat a person. I believe that unless you have completed medical school then you should refrain from attempting to be a doctor. No matter how much you read off the internet, that knowledge is useless unless you know what you are doing and in some cases that little bit of information can be really quite dangerous. Or just fear-mongering.

I find internet diagnosis quite funny. Maybe its because people type symptoms (which are often exaggerated) in to Google and then become convinced that they have some drastic malady. Or there are those who examine each tiny symptom just because they have the dreaded "Wish-You-Were-Sicks". A bizarre "condition" in which someone is desperate enough to believe that they have some kind of deadly disease that they research it and almost make themselves have the problem (aka mind over matter).

I was talking to my GP about it not long ago. I said what had been happening and how long and what other professionals have said in the past. He found it quite funny that unlike so many others I hadn't decided to diagnose some horrible condition myself and decide that that was it, I was going to die. I just looked at him and simply said "I'm not a doctor, so I don't like to jump to conclusions." He actually smiled and said that was something about me that he liked. A young person who has their head screwed on properly. Seems to be a rare thing these days and nearly everyone is convinced that the internet is better than good old fashioned doctors. Personally I'll stick to asking my GP and specialist when I see them.

Wendy xx


  1. I totaly agree with the self diagnosis. Medical school is there for a reason. I do hope this isnt related to my comment on your fb. I only mentioned my neb machine as I have found it has helped me so much, that I want others to be able to benefit from it as well. I hope I didnt come across that I were trying to give to much info away with it. I am also aware that I maybe being a little paranoid and reading things totally wrong. (In hospital at the minute and my brain is a little fried)

    I like the idea of tinkering and taking things apart too, its always such a boost when it comes out the other side better. This might sound odd, but I see you like drawing and tinkering and such. Have you ever thought about making things to sell. I could see you being intrested in the area of steampunk. And some of the dress up items like guns and googles I imagine would be really fun to tinker with when you cant get out and about much.

    Anyway, hope today is finding you a little more settled.
    Take care

    1. Don't worry it was aimed more at a persistent pest who seems to think that he and his equally stupid and arrogant father are at the level of doctor and then going on to say my recent digestive problems were either an eating disorder or cancer. It actually really upset both my friend and boyfriend....

      I like the idea of making things to sell, maybe costume things (currently working with a lovely wig) as my friend is also in to steam punk



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