For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Thursday, 21 April 2011


So here I am, back in a suburban area, in a small flat with everything starting to improve. For the most part anyway. I notice my blog has been a bit quiet lately, but then again, I have been very quiet these last few days, barely interested in anything, this is something I know isn't a good thing. I think that when I start talking about things in therapy that have really been getting to me, I tend to focus on the physical tasks and I clam up emotionally. I've been spending my days in a kind of haze of get up, do the same things, nag about the same poorly done chores before resigning myself to doing it all myself, and then I wind up exhausted and feeling physically tired, but emotionally, kind of numb.

Maybe it is the fact that I have been forced to accept that nothing has really changed in my life from one home to the other. I am still sick. Steve still complains about being asked to do ANYTHING around here. I am still feeling empty and far away from who I used to be. I miss my old confidence more than anything I think and I can't learn to like the person looking back at me in the mirror. The tired, dead eyes and the beaten down expression. I should have been happy about a lot of things but I was never allowed to actually enjoy anything. I can't seem to explain how I feel even to myself some days.

I read on the internet a lot of things, but just lately, I have noticed, along with a few others who shall remain nameless, the number of people who are complaining about how "hard" they have it and how they WANT certain medications. Why? What purpose could that really have served them at all? I mean, why do these people actually ENJOY being on medication and dread being told that there is nothing wrong. For me that would be a blessing. It really would. There are so many people out there who will tell me that I "Don't look sick" or that they "are in so much worse health" and yet they're not the ones who have been feeling exhausted, having to use a nebuliser or having to take cocktails of tablets. If anyone wants this for a life, honestly, they can have it and I can go back to being a normal 23 year old with normal problems.

Sorry about the ranting, but just lately I feel like I had to bottle so much up. I just didn't want to upset people by actually allowing them to see how I feel so I paint on a smile and pretend that everything is OK. I have been so quiet because I knew I would wind up pouring out a huge emotional tirade and then wind up deleting it anyway so that no one could see that I was actually feeling pretty upset, frustrated and angry this week.

Wendy xx


  1. Sounds like what ive been saying..... Are we talking about the same person?

  2. Having a good old rant every so often is good for the soul ;) xx


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