A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.
I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.
A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.
I'll flap my broken wings and erase it all someday... You'll see.
Wednesday, 12 January 2011
Taking a few days...
Sometimes when your feeling a little crappy and sorry for yourself, you just need to make some time for yourself. I guess thats what I have been trying to do today, watching some (for want of a better word) crappy TV, playing some video games (OK I need to lay off Oddworld at the moment as I had a dream that I was Abe's girlfriend... I have NO idea there) and resting up as best as possible.
Yes the picture is of my dream fella... OK I was a blue Mudoken so at least it wasn't inter-species, but yeah I was dreaming that my boyfriend was Abe... and we met when he saved me from an especially angry and aggressive Scrab (some sort of shrieking creature with teeth and a nasty temper) by possessing it so that I could climb up and escape. It was nice in a sort of disturbing way. Among my usual dreams involving Sephiroth and fighting monsters in Midgar. I am starting to worry about my sanity.
Today was spent just spent relaxing, playing on Dissidia and Final Fantasy XIII. Last night I found out THE coolest thing I have heard in a while. There is going to be a sequel to Dissidia... I CAN'T WAIT! It's only March so it isn't like waiting for the first one. I am a bit of a gaming nut but if I am honest, it is all I have to do during the day sometimes, other than running myself ragged, cleaning and then flopping in to bed with exhaustion.
I have recently acquired an I Pod (buying it from my friend Ant) and am currently smitten with it. The thing spends so much time in the pouch around my neck or in my hand, tucked in to the waistband of my PJs, or under my pillow. Its like all of a sudden I am joined at the hip... not that this is a bad thing. For the record... yes Ant, I did put Advent Children on there in the end... couldn't help myself, but lying in bed watching Cloud and Sephiroth go at it was in a word... AWESOME!! Just lately, its the simple pleasures that I am really taking in, I know that sounds corny, but it is just the simple things that make my life just a little more palatable.