For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 31 January 2011

Picking Up The Pieces...

I couldn't believe it, last week kind of melted in to one solid mass, well apart from the pleasures of the weekend and the wonderful friends who really lifted my spirits. If it weren't for my blog I wouldn't have known what exactly happened to me over the last 7 days. In my head its all a blur that all I have in terms of evidence is a seriously bruised wrist, more pills than a pharmacy and instructions of regular nebs until things start looking up.

Its funny in a way, how weird things have gotten. I never thought I would get in to those size 8 skinny jeans that I had "just in case", let alone pull them on and off without undoing the button or zip. If it weren't for the stretched out skin that has lost all elasticity, I wonder, just how good I would have looked. At the end of the day, I guess I just have to make the most of what I do have. I had some reassuring news that Hope wasn't a lethal Roan/Roan gene baby from the Guinea Pig Forum.

I was really worried as Roan/Roan babies are riddled with health problems and they tend to die very young. Hope is such a little cutie and I would never want to lose him. I think after the death of Alphonse, I am being very cautious and worry so very much about my lovely animals.

As for the claim about the pavement that caused me to break my foot, turns out that it doesn't look as though the pavement was raised enough. I am obviously a little let down, but those are the breaks. In a way, I am kind of relieved as I think that the money would have caused all kinds of arguments and problems so I think I am a little glad to not have to worry about that. But I will fight the DWP to get what I should be getting for my illness. I will catch a break eventually, honestly. I think January was meant to be a month of bad luck, well that was what the runes foretold. I am just hoping beyond hope that February turns out a bit more fruitful and my assessment at Atos will be seen fairly and I don't get further screwed.

It is good really that I have my contingency plans up and running for the bills and the like, but I had to get to that point really where those contingencies could be set up. I am trying my hardest at the moment to catch a break, but it isn't easy at all when there is just so much trying to stand in our way. Ah well, keep positive and maybe something good will happen.

Wendy xx

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