For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Saturday, 29 January 2011

Stop the World, I wanna Get Off!!

Have you ever had one of those weeks where all you want to do is find a cave, somewhere remote and just weather the storm? I feel like this after every admission, especially ones that were pretty horrible. Every little noise is making me jump and I just can't sit still, and I don't know why. I should be happy to have the chance to stay in bed all day and sleep, but I am going absolutely spare and getting more and more frustrated by the waste of potential that is all around us. Young people who idly sit waiting for everything to come to them when they are perfectly capable of doing it themselves.

I am annoyed by all of this, as a party I was really looking forward to, I couldn't go because I am just not well enough for it. I feel awful as I love JP like a little brother and really wanted to have some fun on his Birthday, but I have a trick up my sleeve... Can't say exactly what, but I know he will love it.

I think I now want to just work through the recovery process, but it is really hard as even the smallest of things leave you shattered and you can't just dive in at the deep end. I am trying. Believe me I am. It is just so difficult getting back in to routine when you have been sick and with the Magnesium finally working its way out of my system, I am feeling a bit deflated as I expected a bit more of a permanence for it... I know that sounds silly. With Asthma there is no permanent fix. I know this. But I really REALLY can't accept it easily. It is almost like I am asking myself "Is this it?" and "At 23, am I doomed to a life of pills, inhalers and nebs, becoming all the more dependent on all the more medical equipment?"

I think, like most people who are in this boat, all I want really is a normal life. Or what would look a bit more normal and not like an episode of Casualty or Holby City... I never want a near miss with ITU ever again, it hit me today that they were preparing to put me in a coma, just to keep me alive and that REALLY scares the life out of me...

Loves
Wendy xx

2 comments:

  1. Hi Wendy I've been reading your blog for a while, just wanted to assure you if I can- that if nebs, oxygen and steroids (Hydrocortisone or Prednisolone) do not work there are more things they can try besides Magnesium Sulphate depending on how bad you are, so they would not put you to sleep and on a ventilator without trying all the drugs possible, they like to keep you conscious if they can! Usually if Magnesium Sulphate doesn't work (e.g. symptoms no better and poor arterial blood gases) some hospitals will ask Intensive Care to review you before starting a different intravenous drug. Hope you feel back to your old self soon. Simi :)

    ReplyDelete
  2. Thanks for that Simi, I guess they just don't tell you all this because they want you on your guard or something. I think the main worry was that I was starting to lose consciousness from exhaustion :(

    Thanks for the support. Wendy xx

    ReplyDelete

Thanks for your comment. I will review it as soon as possible!

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