For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday 14 November 2010

One of my off days...

Today has been one of those days really. I didn't wake up properly until about mid-day which really isn't like me at all, but I guess the way I see it, I really needed the extra sleep. It happens I guess. I felt better for the extra sleep and when the doorbell went, signaling the arrival of 2 very lovely kids. Luke and Catherine came to see us which was nice.

We hung out, as we always do, and we told Luke and Catherine about our plan and what was bothering us. Catherine seemed to understand, but Luke, well I guess he's just a kid and let's face it, this sort of thing is difficult for even us adults can comprehend. I mean this isn't a small and petty thing anymore. This is HUGE and lets face it, it will be life-changing. Heck, it could even result in a criminal prosecution. OK in this case this may not be an entirely bad thing and Luke would be safe, but its still a long and stressful route, but on the plus side, I am convinced that we are making the best choice we can for the poor little kid.

As for my lungs, well today they just don't want to cope with anything so the nebuliser has been in full flow and its really helped me. I'll sleep well tonight because I am starting to feel a bit better for having the attacks and coughing up the muck.

Love to you all

Wendy x

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