For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday 1 November 2010

Have you ever...

Have you ever had one of those days where everything just sucks? You know, things like you burn your toast or miss your bus or someone just rubs you up the wrong way? Or is that a typical Monday feeling really?

Today has been one of those off days. I woke up this morning and everything was hurting, my back (from lying funny), my joints and worst of all, my chest. It hurts some days because of the fact it takes just more and more effort on some days just to take a breath in and out. This can be scary and the extra effort can leave me somewhat exhausted and drained. I guess that is just how I feel at the moment. I just feel very drained and tired. Using my nebuliser more than I would really want to, but the inhaler just doesn't cut it sometimes.

I was reading a post on the Asthma UK forum this morning and it was about one poor sufferer and her surgery only allowing 3 Ventolin inhalers a year. 3! I can go through that in a month, heck before I got my nebuliser, I was going through 2 a week! I'm glad my doctor doesn't limit me like that.

Although there are times I wish it was that simple, just a blue inhaler once in a while, but I guess this is a test of my character and inner strength. I refuse to let this illness beat me. I gave in to my emotions too many times in the past and it caused problems, lost me friends and gained me enemies. I broke my hand punching a door in temper, I slashed my arm in anger with a freezer saw, but I'm not ashamed of myself anymore, I'm proud to be me. I'm happy that I don't hide anymore.

I may not always win, but even a small victory is a victory non the less.

Love ya

Wendy x

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