For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 8 November 2010

Getting there...

I'm getting better, OK its a little slow and shaky but its progress. I know this sort of thing cannot be rushed really, but I can't wait to be back to my old, creative self. But this has given me time to meditate and plan some new ideas, even a Christmas card and a way of finally putting a lot of stuff in to words.

OK this will only make sense to some but I will try and explain it as best as possible. In the original Transformers cartoons from the 1980's there were groups on both sides called the Combiner Teams. Each one consisted of around 5 or 6 different robots, and sometimes these robots all had very different personalities and attitudes. The most extreme of cases was a robot called Menasor who was made from the Stunticons.

All of them hated each other and when they combined, they created this beast that was often so confused as to what it would do that individual parts acted independantly, but usually it was to the detriment of those around, friend or foe.

Now, I mention this, not for any sort of promotion for the Transformers, but as an analogy for medical teams. A lot of medical teams in the UK now-days work separately to help a patient, regardless of what other teams are doing and it leads to an awful lot of confusion. I guess what I am getting at here is that perhaps doctors and hospitals should liase with each other better and improve safety, and if there is a reason for treatments to be withheld, perhaps those reasons should be discussed with the patient. Maybe its that transparancy that is what is needed with the NHS these days.

And I go off on a tangent again, as I am liable to do. Right now, I have cannonballed a can of berry Relentless, chocolate and shortbread. I should be a lot more awake really, but right now am not and am really starting to think that this is unhealthy. A diet of high sugar and not much else, OK my weights dropped off, but I am either hyperactive and nuts or sleeping for hours, and even days on end. Need to get back in sync methinks...

Love you all
Wendy x

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