For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Saturday, 3 August 2013


The most pleasant thing about the last few days is that I recieved an email from Health Central saying that my blog is among the top 11 asthma blogs. It's a huge honour and a privilage to know that my little blog reaches as many people as it does and it really makes me glad that this blog was made. I've had so much positive feedback over the last few years and it's good to tell my story. I like that people know that disability doesn't always affect the elderly and that there are so many people under the age of 30 who live with a long term, life limiting illness or any other kind of disablility.

I was talking to the Shopmobility people in Redditch, they agreed with my campaigning to make the voices of us disabled youngsters heard. I'm also planning to do some voulunteering (mainly on events just holding a collections tin) for them in the future. It's a worthy cause and something I personally believe is wonderful. They help people with disabilities to enjoy something simple, like going to the shops and enjoying days out in the town centre. I know for myself that getting around when you're sick or unable to walk for any other reason is difficult and sometimes very painful or risky. And many don't have the means or wonderful friend who can help them to get thier own mobility aids, like a wheelchair or scooter, so to hire one is liberating.

Since getting my scooter, I have been so much happier. I can get get where I need to and have been so much more independent and happy. Going out to town to get things isn't a chore anymore and its a huge pleasure. I went to town earlier today and I was enjoying the fact that I could get about without getting so short of breath that I would have to take my inhalers or nebulisers. I've not felt this free for over 3 years. I felt like a prisoner of my condition which made me miserable and isolated. So many people who have health problems feel that they can't relate to the rest of the world. I can say I understand that feeling as for so long, I felt lonely and like I couldn't relate to friends or family. Maybe I was ashamed that I had gotten to the stage when even the smallest tasks made me struggle to get my breath that I didn't want to see people and I did get more depressed.

I'm finally liberated myself from a persistant pest that had been trying everything they could to hurt me or ruin my life. I have finally managed to get something done because the stress of it was affecting me emotionally, physically and making me frightened to live my life. But now something is happening so that person will not be allowed to bother me, and if they do, I have the grounds (and the will) to call the police. I hate that it has come to this and it is such an annoying thing but what this person is doing is a crime. I was completely transparent and showed them 2 years of emails, blogs slandering me and everything else this person threw at me, and I showed them any replies I foolishly made. The problem is that if you want something done about something, you sometimes have to reach out and ask them for help and you have to go with your instincts. I feel liberated and I am finally getting the peace of mind I deserve.

I guess now its time for me to relax, laugh and feel like I ought to, with a nice drink (non alcoholic obviously) and the feeling of assurance. 

Wendy xx

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