For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday, 22 April 2012

Making It Work...

It's been a bit on the mad side recently, I've had a lot to sort through and a fair deal of other things to still be done. I'm doing some new things and finally training soon to do something I have always wanted to do. I'm also planning to do an OU course and if my health will allow it, prepare myself to teach abroad. I want to have at least something to show for my life. I would hate to get to that age where I am old and grey and not have done anything with my life, as well as proving to myself and everyone who doubts me that people with disabilities CAN make a difference and those disabilities aren't a reason to treat someone like they are less of a being.

Right now, while I do my best to build up my strength, I have been learning Japanese. Its a complex language and its a challenge for me to learn. So far I know some of the basics and some of the small things. I can introduce myself and ask simple questions as well as some important phrases. I have also been learning to write and read kanji. I love writing kanji with a calligraphy pen and it looks absolutely beautiful when written down. I'm getting the hang of it and I love doing it. There is something about how the ink flows and the beautiful characters that it creates.

I have taken to my writing again, journals and other things. Short stories and little sketches and doodles are appearing everywhere at the moment. I find my drawing feels like breathing for my mind and soul. It makes me feel liberated and its an amazing release from stress or just generally feeling a bit on the crap side. Last night I was drawing some small monsters from Final Fantasy. One was a Cactuar (a kind of sentient cactus creature which is really funny to fight), a Tonberry (cute but deadly!) and a Magic Pot (a kind of creature that lives in a vase and steals everything not nailed down!). They're eventually going to be part of my Final Fantasy sleeve tattoo so I thought it was time I drew them. Now I just need to do a Moogle and some of the summon monsters and creatures.

It's been a welcome distraction as of late I think from the fact that I have picked up yet another infection. Not sure how or where from, but its gotten in and my body is doing it's usual! So after a quick visit to the out of hours GP and some medications to help with that (admittedly walking from just after Woodrow Centre to the Alex was a bit of a strange feat, and not something one should do with rubbish in their lungs) and to make my breathing easier and I think I'll be on the road to recovery soon enough! Its been an interesting week to say the least but as much as I have had fun doing it, I will happily wave goodbye to this week and hello to the next.

OK so next week there aren't any particular plans, the only thing I am really looking forward to is the arrival of a new laptop battery (3 years of it getting over-charged by accident has taken it's toll on this one) and over the coming months a lot of new parts and upgrades (one thing I am upgrading is the usual drive on this computer to a Blu-Ray drive) and replacing the screen. I may replace some of the outer veneer that has worn away and seems a bit scratched. I want to refurb this computer so its as magnificent as ever, as well as upgrading the one in the bedroom. Yeah... I seem so happy to have my hands in computers and making them work a LOT better.

Wendy xx

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