For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Wednesday, 22 May 2013

Down Time

I'm allowing myself a little bit of downtime today, partly because the doctor and Becky have advised, partly because even after food shopping and having a nice rumble through town, lugging a chest infection around has left me feeling a bit exhausted and if my experience of chronic chest infections has taught me anything, it is that if you feel like you need it, then you probably should go to bed and stay there for as long as you need to. No one ever said that life would be easy. You just have to learn to make the best of things and do what you can or feel up to.

I love going out with Becky to our favourite coffee place for a coffee and panini and to do something with someone I care deeply for. Even though we don't have any blood relation, we are like sisters and we can always understand what the other is thinking. The one thing I like more than having a care agency coming around is that Becky and I have a good rapport. I think its because I am her only client and she gets more than a couple of hours here and there to work with me and she doesn't have to leave for the next name on the list. It allows us the chance to have a relationship on a personal basis which in our situation is very important. For me to accept someone on that kind of level takes a lot of trust, something I don't often give people, as well as these all important bonding activities.  Things like playing a game together or going out to feed the ducks or even just watching a film together.

I recently showed Becky a film that I really like called "Bicentennial Man" with Robbin Williams. It's a touching story about a robot and his relationship to a family over 200 years and his quest to become a human being. It calls in to question the idea of humanity and what it truly means to be a human. It's a really beautiful film and one I whole heartedly recommend.  It has moments of humour, happiness and warmth as well as some of the saddest and most touching moments you can see. The only other film that made me cry like this was Marley and Me. And let's face it, I'm a softy at heart and love a good weepy film. I've been watching a lot of Disney recently to, old favourites and discovering some I'd not seen. I doubt anyone could really hate Disney films as there is always something for everyone.

I'm set up with meds and a comfortable place to rest for now so I'm hoping that I'll improve over the next few days.

Loves
Wendy xx

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