A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.
I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.
A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.
I'll flap my broken wings and erase it all someday... You'll see.
Saturday, 30 June 2012
Missing You Hope
Its been over a year now since my little guinea pig, Hope, passed away. Hope was a special little creature and like me, he had disabilities. He reminded me that even if things are a bit crap now, that life can still be lived in a way that is both meaningful and enjoyable. I think of him often and I miss the sounds he used to make everyday.
Even if there is part of me that feels sad for the loss of such a beloved pet, at such a young age (he barely got older than 6 months old), there is a part of me that is happy that he is no longer suffering and he doesn't have to deal with his seizures or the urge to hump everything that he saw (which was at times the funniest thing you could see. I know he watches over us and urges me to stay strong, and never give up on anything, along with Alphonse who has been gone for 18 months now, and my beautiful gentle giant, Patch who left us only 6 months ago. They all left me with holes which I struggled to fill, but I know that if they could see me now, they would be proud of my resolve and strength.