For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Wednesday, 5 October 2011


I had been trying to get this sorted for a while, but fate had other ideas, my old TV finally gave up the ghost and was crying to go to the great living room in the sky. It was a shame because I had had it for so long, maybe about 18 months to 2 years or so, I can't remember exactly when we got it, it was one of those things you seem to acquire over time and it did serve me well over the time.

In its place is a nice new TV which I got in a sale, but that isn't the main focus of the story. It is actually what lead me to the story in the first place. When you replace an appliance, it is only then when you actually go behind it and find out exactly whats under or behind it. You can't just plonk the new thing exactly where the old one sat, you have to rearrange EVERYTHING. When we moved here back in April, everything was really arranged haphazardly and things were just shoved in to a place where it would do for now. There was no feel of permanence or settling in. Things were just thrown in to place and we just kind of thought "That'll do" because it was in all honesty a stressful few days. We had to decorate and move in less than a week.

I finally plucked up to get behind the old TV stand and see what horrors (and I say this as honestly as possible) lurked in those corners. A tangle of cables which looked insane, I managed to sort and bind the cables and tie them down so that and have them out of the way. It was amazing really to see just how many wires and cables are actually there. I mean there were cables for everything from my Lifeline to my cable and internet, and the other screen I use for my PS2. I sometimes have both screens running, one to watch TV or DVDs or whatever I want on there, and the smaller one used for the Playstation where I can veg out and escape to a fantasy land. It also helps when Tom wants to play on his games on the X-box and I want a game on the PS2. It is quite companionable, even more so when we both play together on one game.

I actually felt as though I'd achieved something moving all that stuff out and wiping away the dust and cobwebs. Its great now because its fresher and the air of the room and how it feels is so much different in here. The TV that I actually vomited over on Boxing Day (THAT was horrible) and it made all the difference to change how the room felt. All the tension and frustration that had been centred around that TV and other furnishings from the YMCA just added to this feel of despair and depression that had been sweeping over me over the last few weeks.

I'm making seemingly small changes that make everything else feel different and better.

Wendy xx

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