For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 11 October 2011

Life Is...

Life is such a precious thing. However we all spend way too much time brooding about the past, what could have been, what might have been and what was. Its only been recently that I have been looking at what IS. It has helped to get some much needed clarity on things and life as a whole. Realising before it was too late that I push people away because I myself cannot face the uncertain nature of living with Brittle Asthma and what that entails. But the main thing I have to remember, to keep myself grounded is that the minute I give up and stop kicking, thats when I ought to stop taking the meds and lay down and die. And that is just not something I can think about doing, not now. Not anymore.

To hear that someone who I care about is dying and won't recover this time has brought me crashing down to earth and it has put a lot in to perspective. It is tragic that such a beautiful and strong young lady is in that situation and to know what her family knows now, I think its hard for anyone else to comprehend. But it is very sad. Very VERY sad to hear about Rachy and after everything shes been through. I spent some time alone with my thoughts, had a cry, and then thought about it. I then heard that Tor was having her transplant today and it felt bittersweet, almost as though one person was getting their chance while another fades away and that made it all feel even more real than I think I was expecting.

So I sat and I mulled it all over. Well to be honest it only strengthened my resolve further and it reminded me more that what I need to do now, I need to stick with. I need to do this and I need to get to where I need to be because if I didn't then what an insult to those who have lost their lives before the age of 25. There is nothing worse than a person who has so much to offer and so much to give, just giving up and forgetting to live the lives they were blessed with. There is nothing worse than wasted potential and it makes me feel physically sick.

I've been keeping a more personal handwritten diary again and its been as cathartic as usual to just write down whats bothering me or what I am thinking as well as giving me some kind of reference point as to how far I have really come over the last couple of years. I just want so badly to say that all my demons have been beaten, but that would be childish and wrong, but I am getting there, each day. Tom has helped me so much and I am always going to be grateful to have him in my life. There is no other man I would ever want and this is THE one.

I guess right now all we can do is focus on what we can and take even the small victories and smile.

Wendy xx

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