For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 4 October 2011

It's Been A While...

Its been a good few weeks since my last blog. I guess I was just embarrassed about a few things that have been making me feel really bad about myself and I just didn't feel much like talking about any of it. Its been hard to get to grips with a lot of things, but I really didn't want to post for fear of being either judged or yelled at by various people. People are often quick to make judgements and criticize others for their less than perfect bodies and minds.

I am not perfect. I am flawed and I do have a LOT of unresolved issues in both my past and present, but I do work on them. I do get up every morning and try and keep a positive outlook, but there are days that this just doesn't happen and I feel my world coming down with a bang. I have often said this and I still believe that I am not the worst out there, nor am I the only disabled person now or ever. I do get up every morning feeling thankful for the fact that although things aren't easy,



I nearly gave up at the weekend. It has to be said. I was just so fed up with everything and wanted oblivion. I had began to write a text for my friends and family, telling them how I was feeling and in some ways saying goodbye and I'm sorry. I was saying that I was sorry for being so weak and just not able to carry on anymore. Then I stopped. I put the pills back and realised that this was a selfish act. Suicide is selfish and it never solves anything. Yes it meant that I wouldn't be suffering, but the price would be causing my friends and family, the people I love, to suffer and that would have been a lot worse. It's toying with not only my own, but other people's lives and its not fair. On anyone.

A lot of my problems began when I tried to stop taking the Seroquel (an atypical antipsychotic medication) after leaving Steve because I didn't want to think I'd need it anymore. Yes without him it is honest to say that I am not only happier, but finally able to get back on track. Maybe I thought that getting rid of a destructive force in my life would allow me to conquer my mental health once and for all. I didn't take in to account the scars which run both inside and out.

Inside my lungs is a LOT of scarring and some of the smaller airways have shut off completely. This means my lung function is only about 34%. I upset the scarring last weekend and had myself spitting blood for a few days as a result. All I had been doing is singing on Rockband and having some fun where suddenly, out of nowhere this black stuff started coming out when I was coughing. Black tarry clots of blood, and a visit to the doctor later and I found I'd made the scaring bleed slightly, which would settle down by itself. It was painful but it did settle down eventually.

So I guess thats all I've been doing just lately.

Wendy xx

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