For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Type 1 Brittle Asthma, Various Allergies, Neutropenia, Chronic IBS, Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 20 May 2011

Bad Days...

Yep, even I get them. Yesterday was just a bad BAD day and I felt deflated and shattered. Not suprising when I found out exactly what had caused this lovely Pneumonia which has been tearing through my lungs. The problem is yet again Steve dropping the ball when it comes to the cleaning and housework. I know he doesn't value it the way I do, but surely he should at least make the effort when he knows that someone he cares for is very prone to infection and will get sick at the drop of a hat?

Maybe I am asking too much? Please tell me if I am, but I only ask that he wipes the sides down when he's used them, cleans the kitchen floor and cleans and changes the bowl we use for the teaspoons every day? No water should be left for longer than 6 hours as it becomes stagnant and in this case growing mold. Yes MOLD. Just what someone with COPD or severe asthma really doesn't need to be dealing with, but there you go. Complacency and sheer laziness strikes again. And I am really getting sick of being dragged across the coals and made to suffer unnecessarily, just so he can sit around and play tower defense games or whatever he does on his computer.

Yesterday, I spent most of the day (between nebs and wheezing) cleaning the place down and really aggressively tackling the mold in the kitchen. I was absolutely shattered, unable to eat from just being so exhausted and ill and my antibiotics tearing their way through my already delicate system. I spent most of the evening dealing with a stomach upset from hell, which involved cramping and I was actually screaming in pain every time I went to the loo. This happens everytime I am on Clarithromycin, which is the best antibiotic for my infections as they respond well and quickly. Unfortunately that does come at a heck of a cost and it gets more unpleasant every time I have them.

Now all this is preventable and I just wish someone would get through to Steve that this is preventable, I recover a little worse each time and my lungs won't put up with too much more of this and I could be put in such a position that I could end up on the slab, rather than going out there and getting everything I want to get done done.

Loves
Wendy xx

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