For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday, 26 January 2014

New Blog Address.

First off, I have changed my blog address as there have been some people stalking my blog and using it to make nasty comments or just generally winding people up. Got to say, that is not on and I won't tolerate any kind of bullying. My journey still ongoing and my blog reflects that. I won't let anyone bully either me or anyone I care about in to hiding because it's immature and I wouldn't want anyone to think that they had won over us. I haven't retreated. I have just moved. 

I've had a few rather tiring days recently, no other reason that my chest has been playing holy hell and the cold weather hasn't helped it. This time of year is a bastard for us asthmatics. It's cold, wet and miserable and our lungs seem to dislike this intensely. Because of this, all I have wanted to do is sleep. Which admittedly hasn't been particularly interesting. I don't think you would want to read a blog that said "Got up, did nothing really, went back to sleep." because let's be frank, that would be boring as hell. It's best to kind of mix things around a bit and avoid too much routine and in turn avoid the monotony, which can be as bad for you as doing too much,

Recently I have been supposed to be on a regime of "Stay indoors" to get of the worst of my recent pneumonia infection. Thing is, people who know me best will know well that I really don't do the whole "sit there and do nothing" thing and I do tend to get a bit of cabin fever when I haven't been out for a few days. I don't even understand it myself, but I get really antsy and want to go and do just SOMETHING to break the boredom. So the recent thing has been a game called Disney Infinity. It's like Skylanders but with Disney characters. You can run around areas and do adventures with different characters on the base. It's a lot of fun when you play the "Toy Box" mode and you can build your own little play area for your characters (or take part in a bit of PVP if you are that way inclined). I'd say don't knock it until you try it. You can actually have a lot of fun with things if you approach them with an open mind. Besides, there has to be something fun about using Rapunzel to beat the snot out of Tonto with a cast iron skillet! He started it. She finished it!

On top of my games and watching films, I have been drawing and writing too. Not being able to work has meant that I have had an abundance of time to pursue my own projects and other things. Admittedly with rest and being ill being something of an interlude. Although I do admit that some of my best ideas come when I'm asleep.This is why I have taken to keeping a notepad and pen under my pillow (well behind the backrest) so that when such ideas strike, I am ready for them.

Wendy xx

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