For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday, 13 December 2015

Moving on...

So I am beginning the process of moving on from my home in Abbeydale to a small bungalow on the other side of town. Basically, the main reason this is happening is that my place now currently doesn't fit my ever growing and ever changing needs and it's no longer safe or practical for me to live here anymore. My new place is lovely, out of the way and in a really quiet area where I am unlikely to run in to any issues (not having anyone upstairs will be a huge part of that, its not easy to have people living on top of each other and it causes more friction than anything else) that I have had here. Don't get me wrong, I have loved this flat and it has been my home for nearly 5 years and it does kind of suck to move on but I'm just looking towards the future. There are things I will miss in Abbeydale (mainly some of the people here were quite lovely) and things I won't (like the acrid stink of weed in the air which seems to linger throughout the estate).

My new place is a lovely little bungalow, one bedroom (with cool sliding doors between the bed and living rooms so that I can almost live open plan), a small room which will be the animal room, kitchen, hall and wet-room. This means that I can be a lot more independent and able to take care of my own needs a bit easier. This is fantastic because I won't rely just on carers, although they are a fab bunch, and I will be able to live my life in a way that suits me better. Obviously with moving comes a lot of work and stress but its all going to become a part of that "greater good" that I have been working hard towards. I want a better life for myself. I want a better future with people (and of course my animals, without whom I would be empty) who I care about and I want to be able to cast off the past and get on with my life.

The past is the past. Get over it and move on. Don't wallow in the misery and become a martyr to it then complain when suddenly you find yourself completely alienated and alone. I've moved on from a lot over the last few years and the whole thing didn't kill me. It made me stronger. I learned that I must value my own self as well as putting the other people's needs (not wants) first and that in trying to be kind, I put myself in situations that I really didn't want to be in. The key to moving on is to know that even though you made a few errors, you aren't a bad person. You are entitled to be happy. And no one ever has the right to make you feel otherwise because they want to stay anchored to one thing in the past.

I have enjoyed the nearly 5 years I lived in this flat. Theres been laughter, love, friendship and a sense of belonging here. There have been great times and times when things seemed to be harder to work around but the main thing is that I never let things get too bad. I think that a new year and a new start will be fantastic for me and it may even help me with my health. Being in a quieter part of town and in a place that's easier to access may be the best thing for me. I'm not for one moment suggesting that I will be perfectly well and not on oxygen or in a wheelchair but maybe these good days which I hear so much about may come to pass more often and hopefully when I have done my week of assessments, tests and trials at Heartlands (we don't know when that will be yet), there could be light at the end of the tunnel and hope that things are going to move on and get better.

We just need to hope and keep a bit of a positive look forward to the future and if we do, we will get there. Just got to keep pushing now.

Wendy xx

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