For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 1 January 2019

Happy New Year

I'll start off with wishing you all a happy new year and I hope you all had fun and enjoyed the festive period. It's been a quiet one for us here as I have had flu for the past couple of weeks and it's really taken it out of me as it usually does. Flu is horrible for anyone but to someone with brittle asthma it can really be awful and it drains you completely. Not to mention that my body has a really weird habit of overcompensating when it tries to fight anything off. And then there's the complications of flu themselves.

This basically results in an allergic reaction. In my case, it manifests itself with hives. Hives are weird as they are red, they're itchy and they drive me crazy. The first time this happened was when I was in school. It was during PE that my friends noticed that the small spots that seemed to be annoying me all day had exploded all over my body. You name it, they had happened, looking like flat topped bubbles under the skin. I was feeling pretty lousy and one friend made sure I got home, told my then stepdad what happened as I went to lie down. At around 5, I remember my mum coming in as I was sat on the floor (can't remember what I was doing) but I remember how swollen my lips were. Luckily it was just a reaction to a virus but it still happens now, almost 16 years later. It's easily managed with antihistamines and bed rest but it makes you feel lousy.

I was determined though to make sure that I was at home for both Christmas and New Year. I really didn't want to spend a festive season in hospital again. Been there. Done that. Would rather not do that again but of course it's meant being careful. Keeping everything to hand and getting enough rest have been paramount but I can honestly say that I'm not having an easy time of it. I'm back on oral antibiotics again which means there's another infection brewing which explains the exhaustion I feel right now. Another danger symptom which has been happening is the general lack of focus on any one thing. This is probably one of the more annoying things as I can start doing something then after a few moments I'll have given up and started doing something else. It's frustrating and hard to understand and even harder to explain to someone else. I did manage to speak to someone the other night but there's not been much really in the way of conclusion or generally determining the issue. I'm not sure myself either.

Other than the usual health issues, things are pretty much as they should be. The guinea pigs are growing more confident, and I am getting to see those different characters come out. Bakura is probably the naughtiest little fluffball I've had in a long time but that's just a little boy being a little lad really. The way his fluff is growing though is probably the funniest as he has a curl on his face that looks like he's been styling himself like an "Emo kid". He's getting bossy towards the others though and often he's the one who starts (and finishes) any arguements. Then when you pick him up, he becomes like a soft little baby in your arms, definitely knows how to wrap me around his little paws. Since adopting the two, it's been great to see Yugi's interaction with them and I've no doubt that this was the right thing to do.

At the moment, I keep falling asleep sat up so I think I'll leave this here and go rest for a bit.

Wendy xx

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