For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday 18 September 2016

Things are Changing!

It's funny but over the past few weeks, I've made more progress with myself than I ever did in 2 years. I think that moving from Abbeydale to the bungalow (still not saying where it is for privacy reasons) has played a part in that. The biggest issues with the flat weren't the flat, but the surroundings weren't right for me after 5 years, my health and needs have changed a lot and living in flats that are stacking people one on top of another in a loud area (often full of drunk people) just wasn't working anymore. The place we're in now is in a quieter and generally nicer area. The property has more space for us to live in. It sounds silly but it also has allowed me yet further distance from the past as well. I was carrying too much on my shoulders by staying there but at the time it was my home and I won't ever deny that we did have good times in that flat. Sometimes it takes some time and distance to really see what was really going on and how that was affecting me but because I didn't think I could have anything better, I kind of settled for it.

Having Jace here with me is wonderful. He's really taken to caring for me and making sure that I'm safe and comfortable as well as maintaining my independence as much as possible as that is kind of part of who I am. I have been independent since I was 9, I won't let that be taken from me. Its been unusual as I have been so used to my own routines, and when you live by yourself you don't notice the little quirks you have in your personality (e.g. aggression towards the toilet seat). These aren't bad things by any means, we all have our quirks and eccentric natures. Its called being human. But at the same time, I don't think we are supposed to live solitary lives. Its down to finding the right person and you both enjoying each other's company. Even if that is spent while one of you is playing on the Wii-U and the other on the Vita. Its OK because we're still doing things together.

The best thing is that I know that I can trust Jace with things and he is a calm and patient person. He doesn't know exactly everything I am going through for himself but hes been so good and gentle with me. Over the last couple of weeks I have had a persistent fever and chest infection that really isn't shifting well. The last few days have been pretty bad asthma wise and I have been pretty tired and sore as a result. Having someone to spend the afternoon playing games with or just watching a film and cuddling helps though. Sometimes its the non-medical things you need like affection and closeness that can make a sucky situation less so.

The guinea pigs, well they have flourished here too. I can't believe it was just a year ago when I brought those two fluff balls home and how tiny they were! Kaiba looked more like a pom-pom when I first got him and I remember thinking his fluffy fur was so funny. Now he is a big boy (and we know now that he is actually blind as well) he needs regular grooming and trims otherwise he starts to resemble a mop! Its funny when he sits with his hair over his face like "Yeah. I'm awesome" and then plops down in the corner of the hutch. He still hasn't mastered how to climb UP the ramp yet (seems to have more fun rolling down there instead which is actually funny to watch!) but he has time and I have patience with him.

Yugi. Well I remember when I first saw and held little Yugi and he was barely the length of my hand, hyper like all young guinea pigs but the most loving little lad. Hes still that way even now and he seems to know when either Jace or I are up as he will wheek for breakfast and attention. However he is the greedier one of the two and is probably a little on the chunky side (thats OK, he's a pig its kind of in his nature) but he does love to cuddle and he has grown so well and I am proud of them. I am proud of all of my animals. Loki is doing amazingly well too now we are out of that stressful environment and now have a wonderful future coming our way.

Just goes to show. Change is a good thing sometimes.

Loves
Wendy xx

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