For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 10 May 2016

Change. It Can be Good. Honest!

This last week has been one of discovery and getting to know a new console. Since getting my PS4, I have been lost in the adventure of the Transformers Devastation game, seriously good fun and fits in to the storyline pre-Transformers The Movie (1986). With 5 playable Autobots and a bounty of weapons, mods, moves and other stuff (plus some little things to look for like Decepticon flags and Kremzeek! (Kremzeek was like this little electronic bug character that Megatron used to "infect" Teletran 1 during the 2nd season of the original series. Small but it packed a heck of a punch) and side missions). Plenty to keep me occupied and amazed as I watch the characters come back to life once again. OK so my splitter and PS4 didn't agree with each other so now my splitter manages my Xbox, PS3 and Virgin box. That's OK of course, as they are all plugged in and all work but it was a bit of a pain to sort out at the time.

Another thing I have been exploring came in the form of an orange box. Inside the box were some rather interesting and some unusual sweets and snacks all the way from Japan. TokyoTreat is one of those box subscription things you get and every month you get sent a generous amount of interesting new things. This is great because chances are you have never tasted anything quite like it. I experienced the rather delicate sweetness of Matcha (powdered green tea). There are things that I am looking to get again (admittedly buying online) and some things I am not so sure of. Either way it was a great little idea and the snacks and treats definitely add something to my day because you know what they say about stagnating and getting in to ruts. Something I would avoid like the plague. While illness is draining, monotony is worse. Its a fine line between routine and a little bit of spontaneous fun.

You should enjoy yourself and do things that make you happy. Don't be scared of new things and just go with it. After all, we only have so long to do it and when you think about it, what is stopping you from doing the things you want to do? Those who blame others for missed chances are weak willed and foolish. Maybe it's easier to blame others for your misfortunes rather than being adult and taking responsibility? I don't know. Personally, I am making the most of things, yes there are days when I feel so exhausted that I can't move. Yes there are days when I just want to give up and break down in to tears. But then I remind myself of something, I am still alive. Despite the illness, people who tried to drag me down their level or anything else. I am still here. I am still able to hold my head up and say "You know what, yeah the past was a bit rough but who says I am letting the future be the same?"

People ask me how I cope with everything. The simplest answer is "I just do." I can't wave a magic wand and make it better and make years of chronic chest infections and pretty much daily asthma symptoms and attacks disappear. Nor can I erase the damage that has done to my lungs and the knock on effect that has had (and the effects of the treatments) on other parts of my body. There is no cure. I know that. I accept that. BUT I keep on going because I don't see why I should have to stop because of things. I am independent and it is a huge part of who I am. I have my wheelchair and oxygen cylinders so that I may live as comfortably and independently as I can. I have freedom. Maybe not in all the ways that someone would want it, but I still have something, right?

Since moving I have felt so much better in myself. Living in a quiet and more out of the way area of Redditch has been lovely. Sitting around and listening to birds outside. The area is lovely and peaceful and there's no trouble. Ever. OK so its a bit out of the way but I don't mind it too much (OK so the buses still need a lot to be desired at times, last week when Jace was over, the last thing we wanted to hear a bus driver say was "sometimes the brakes work, sometimes they don't", talk about unsettling...) I do feel calmer and I have been able to relax and enjoy my bungalow. One thing I definitely agree with now is that change can be a good thing. Change can bring about growth and often that is where things start to get better. Maybe things will get better healthwise? Maybe not. But I know in myself that I am going to withstand it and I am strong enough to get back up again.

Wendy xx

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