For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Saturday, 2 April 2016

Turning Around.

Sometimes, I get so sick of people telling me how "easy" my life is. Especially when people assume that it's easy being disabled. Let's be clear about on this and I know many people would agree when I say it. Being disabled is hard. Being disabled is sometimes incredibly frustrating. Being disabled means that crossing paths with ignorant people can be the worst thing ever. Someone once said that due to my illnesses, which mean that I'm on ESA instead of being made to look for work, that they were jealous. How can someone be jealous of this?! It's sick! I have missed out on things due to my conditions and have also lost a lot of things I enjoyed. I have days when I can go out but sometimes even something as simple as getting on a bus can start a huge confrontation, usually due to lazy drivers and parents with buggies that shove you out of the way (not all of them are like it but I have met my share). 

And before ANYONE starts. I am NOT saying that babies should be thrown off of buses. If a wheelchair and a pram are waiting at the same stop, the person who arrived first should get the place, unless there is room for both. If a wheelchair wanted to get on and there were already prams there and they couldn't be folded, then fine. I can wait. All I am saying is that if you can hold your child and theres a wheelchair to get on, please be considerate and DO NOT shove someone out of the way to barge past them. It's rude. Oh and to be told that "that thing on [my] face is disgusting..." yeah... Its keeping me alive whereas some people and their ignorant attitudes are probably sending them to an early grave.

When you have brittle asthma its fair to say that there are days where you really can't do very much. Heck recently I have been having a period of that and it drives me mad because I am an active and very independent person. I choose to live in a home which is clean and fresh. I choose not to live like a slob. I choose to not let aspects of my life affect others because I was brought up better than that. Obviously I do have bad days and I get really annoyed with them because I know there is work needing to be done and I need to get up and do it, even if I have no energy or am in pain because who else is going to do it for me? It may seem harsh but that is how it is and it is sometimes harder work on my body than I ever realise.

When I get up in a morning, I start my days with food and the first fistful of tablets of the day. Followed by liquid meds and nebuliser meds. Then I can get up and get going and do whatever it is I do some days. A large proportion of my day is spent working on sewing projects, gaming and playing with my pets. Loki has recently (thanks to the kind donation from next door, seriously, everyone is amazing here!) moved outside in to an outdoor hutch/run. He loves it! It's warm and cozy at night and during the day he has all the room he wants to just be a bunny. This means that he is in a more suitable environment and hes a lot happier as a result. That to me is a sign of owning a pet and doing it responsibly. I do go out to him daily with food/water/greens and hay so he is not starving. None of my pets are given less than complete love, care and compassion.

These last few days I have been really suffering from my infection and the fact that I have been working daily to keep my home to the standard it should be kept to. The people who lived here before didn't give it the care and attention it needs and as a result there was a sadness in the air when I first moved in, probably because the people who had it before me used it as some kind of squalid pit with it's own personal fly-tip. I fell in love with the bungalow from the moment I saw it and wanted to live here.  Now I am spending time sorting it out and making a home for myself. It looks nice already but there are still some things that need to be sorted and a few things that need to go up before I consider it finished. It's a long project to come to life but I do take great pride in keeping my home neat, tidy and keeping that pesky dust down! I have become quite adept at wheelchair hoovering! So I have no excuse to live in a filthy home. Then again, I am of the belief that no one has the excuse to live in a dirty shit-pit (excuse my language).
I loved the quiet surroundings and the fact that the people here are just so much nicer than my old neighbours. I started working on a cross stitch project when I knew I was moving. It was the last thing I started at my old place and the biggest thing I've finished here in my new home. I did a cross stitch of Sephiroth from Dissidia, it took me 3 months of hard work. 3 months of nights spent curled up with it and now it is framed and mounted. I felt an amazing sense of pride when I put the finished work in to the frame. Even more so when people started seeing it out on display and saying how amazing the piece was to watch it grow. I did take photos and they are on my Instagram page of the process, along with other pictures of the things I do in the place I do them. I like to live my life despite having things that make it harder for me to do so and I hate it when people think that because I am disabled that I won't enjoy going out or socialising. I am still here and I am making the best of my lot here because I have to. I can't sit around and feel sorry for myself forever now can I? I like to make the most of the days I can do things and on the days where I just don't have the energy, I try and give myself things to do so that I don't stagnate or get in to a routine of not doing much.

Its been since moving that my whole attitude has been turned around. If someone had said to me last year that I would have moved in to a new home and found myself incredibly happy once more, I would have thought "Yeah. OK..." but look at how things have turned around for me!

Wendy xx

No comments:

Post a Comment

Thanks for your comment. I will review it as soon as possible!


ABG (2) acceptance (5) Adventures (1) Alphonse (2) Ambulances (5) Amusement (1) Angry (3) Animals (2) Another Day In Midgar (2) Appointment (1) Art (4) Asthma (22) Asthma Attack (12) Asthma UK (2) Awareness (2) Bad Attitudes (1) Bass (1) Benefits (3) Birthdays (3) Blogs (2) Blood Pressure (1) Books (1) Bucket List (1) Busy Day (2) Calming (1) Catherine (2) Childhood (2) Chocobo (1) Christmas (4) Cleaning (2) Close Calls (1) cold (1) Comforter (1) Compensation (2) Creativity (1) Cruelty (1) Custody (1) Cute (1) death (3) Debt (2) Depression (4) Design (1) diary (1) Disability (1) Disgust (1) Disney (1) Distraction (2) Doctors (4) documentary (1) Dr Pike (1) Dreams (1) Drugs (1) DWP (1) Dye (1) Eating Patterns (1) ESA (1) Exhaustion (3) fair share (1) family (1) Films (1) Final Fantasy 7 (5) Flu (2) Fluid (1) Food (1) Friends (7) Gaming (2) Gizmo (2) glass half full (3) goodbye (1) GP (5) guidelines (1) Guiniea Pigs (6) Guitar (1) Hair (1) happiness (6) haters (1) Help (1) HND (2) home (3) home use (1) Honesty (3) Hope (4) Hospitals (8) Housework (1) Human Nature (1) Illness (5) Infection (5) inspiration (1) Instincts (1) Joke (1) JP (2) Judy (1) Labas (1) Life (2) lost cause (1) love (1) Luke (1) Lungs (3) Lush (1) Me (2) Medication (7) Memories (1) Mike (1) Mind (1) MSN (1) Music (6) My Past (1) Nathaniel (1) Nebuliser (8) Needles (1) neglect (2) Neighbor (2) new look (2) New year (1) NHS (2) Noise (5) Omen Shadow (2) One day's supply (1) Organ Donation (1) Pain (3) Patch (1) PDSA (1) Poem (1) Positivity (1) Pred (3) quotes (1) Rachael Wakefield (1) Rachy (1) Random ideas (1) Rant (1) Recovery (7) reinvention (2) Reporting (1) Routines (1) sad (1) salmonella (1) scared (1) Sean (1) Selfishness (1) Sephiroth (4) Sephy (3) Simon's Cat (1) Sims 2 (1) Sleep (6) Sorting it Out (1) Spite (1) Steve (1) Store Room (1) success (1) Support (2) Survival (4) Tattoos (1) tears (1) Technology (1) Temparature (1) Thank You (4) The Crow (1) Therapy (1) Thoughts (1) Thrash (1) Tired (1) Toys (1) Transformers (1) Transplant (1) Veins (1) Vomiting (1) warnings (1) West Midlands Ambulance Service (2) winter (1) work (1) Year (1)