My Journey... every step of the way.: Hanging on again...

For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 30 November 2010

Hanging on again...

I really am hanging on by the skin of my teeth at the moment, peak-flow is down to 150 l/min (my best is about 410 l/min so this really isn't good at all) regular nebbing and I can't seem to complete the simplest tasks like reaching over and talking without becoming short of breath or having an asthma attack. This isn't good at all really and an admission could be just around the corner again. I really don't want this as I have practice tomorrow and a gig on Monday. So I can't afford being ill or rushed in to hospital at the moment. So I am in a quandary.

Go in, get treated for what is probably going to be a chest infection and may need long term treatment, miss the gig and let Ant, Rich and Twitch down big time. Or try and stay out at least until Monday and then go in, chances are, the universe will make that decision for me, and I have a feeling I won't like the answer. Then again, it may be that this gig is not going ahead anyway so I can at least relax, for now. Although I have been wrong before and I will probably be wrong again and again. So I guess I gotta play this one by ear and hope for the best.

I'm not really in a maudlin mood, I just feel generally unwell and don't know where to turn of what to do. Steve, Stacey and Nat are all under the impression that I need to be in hospital, but I wonder what exactly they can do for me there that I can't do here. I have nebs, I have pred, I have everything else but it is a tricky one.I am obviously unwell, but I don't feel unwell enough to be in the hospital, it is an acute hospital and is probably over-run right now.

I guess I have to play this by ear.

Love Ya
Wendy x

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So, what is this blog?

This is a blog about my life and what I do. Sometimes its witty and others it can be quite serious, but I feel that sometimes the steps you take in life are the building blocks for the future. I try and at least keep a positive outlook on things because sometimes that can be enough to get you through. So, come and delve in to this crazy, spontaneous and sometimes scary world of mine.

Named as one of Healthline's best Asthma blogs of 2013, 2014, 2015 AND 2016.