Update...

Well it seems Steve managed to suck it up and stop acting like a spoiled child. For this I am glad. Upstairs however, decided to have one of their mad dance parties that they have on a regular basis. So this means EXCESSIVELY loud music and what sounds like hippos playing musical chairs and falling over themselves. This usually goes on until 2-3 AM. Not a palatable prospect when you have to rest to clear your chest off and get rid of fluid.

All I want to do is sleep and be out of pain, is that really too much to ask for, really?

It looks like there is another flat that needs a noise abatement order as this is completely unfair and they know of the situation, heck they were watching me go in to the ambulance from their balcony so really they should have used common sense. If someone has been in hospital around you, it is only courtesy to keep the noise down so that they recover. Or am I just being an idealist here? Someone please tell me I am DYING to know so I can adjust my attitude as needed.

I really need sleep. I am becoming tearful and overtired and its really starting to affect my judgment and making me 100% more irrational, so I keep getting wound up, but unfortunately my neighbors REFUSE to let me get some sleep. I hope they read this and realise that they are starting to make my health suffer and my piece of mind is rapidly ebbing away.

At least I have managed to cough a bit, not shifted anything but its a start. It really is exhausting when I cough and it hurts a lot. I am so tired that eating is like an Olympic event and nebbing has become a 4 hourly ritual. Fun. The very good news is my temp is down from 40.6 to 37.5 so thats a start in itself. I will get through this.

Loves
Wendy x

One of my off days...

Today has been one of those days really. I didn't wake up properly until about mid-day which really isn't like me at all, but I guess the way I see it, I really needed the extra sleep. It happens I guess. I felt better for the extra sleep and when the doorbell went, signaling the arrival of 2 very lovely kids. Luke and Catherine came to see us which was nice.

We hung out, as we always do, and we told Luke and Catherine about our plan and what was bothering us. Catherine seemed to understand, but Luke, well I guess he's just a kid and let's face it, this sort of thing is difficult for even us adults can comprehend. I mean this isn't a small and petty thing anymore. This is HUGE and lets face it, it will be life-changing. Heck, it could even result in a criminal prosecution. OK in this case this may not be an entirely bad thing and Luke would be safe, but its still a long and stressful route, but on the plus side, I am convinced that we are making the best choice we can for the poor little kid.

As for my lungs, well today they just don't want to cope with anything so the nebuliser has been in full flow and its really helped me. I'll sleep well tonight because I am starting to feel a bit better for having the attacks and coughing up the muck.

Love to you all

Wendy x

I can't wait for you to shut me up...

Living with a lung disease can be very tiresome at times indeed, but I never was one to stop and do nothing because of it. Heck, I always believed in living my life and doing whatever I wanted in spite of my problems, more proof that, as a friend of mine says, Life is what you make it.

Today was a good day. A friend of mine introduced me to a guy called Josh. Josh is young, vibrant and has a fiery passion for music and the arts. Something I can relate to very well. He came with his guitar, amp, pedal and other equipment. We had a good guitar session, I even tried singing (although I confess, I am a little rusty as I haven't sung for quiet some time). It was great fun. Until about 3 when my lungs decided that they really REALLY didn't want to play anymore and they did, as asthmatic lungs do, begin to tighten and become wheezy and breathing became difficult and painful. It took me about 2 nebs again to calm it down and get things back under my control.

It left me tired and weak unfortunately, as those of us who live with asthma know it can. So I decided to recount my thoughts for today and how I was feeling about things. Interestingly it seemed like the right time to do this, as I had merged and coloured 2 separate pieces of work and making them in to one image. I'd never tried this before and it actually worked out well, the 2 images solo didn't fill the page, so the 2 put together made the picture complete.

I guess today's lesson is to push back when your body wants to rebel, its not a bad thing to challenge whatever is going on inside you, just as long as your sensible obviously.

Carpe Diem!

Wendy x