For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Saturday, 13 November 2010

I can't wait for you to shut me up...

Living with a lung disease can be very tiresome at times indeed, but I never was one to stop and do nothing because of it. Heck, I always believed in living my life and doing whatever I wanted in spite of my problems, more proof that, as a friend of mine says, Life is what you make it.

Today was a good day. A friend of mine introduced me to a guy called Josh. Josh is young, vibrant and has a fiery passion for music and the arts. Something I can relate to very well. He came with his guitar, amp, pedal and other equipment. We had a good guitar session, I even tried singing (although I confess, I am a little rusty as I haven't sung for quiet some time). It was great fun. Until about 3 when my lungs decided that they really REALLY didn't want to play anymore and they did, as asthmatic lungs do, begin to tighten and become wheezy and breathing became difficult and painful. It took me about 2 nebs again to calm it down and get things back under my control.

It left me tired and weak unfortunately, as those of us who live with asthma know it can. So I decided to recount my thoughts for today and how I was feeling about things. Interestingly it seemed like the right time to do this, as I had merged and coloured 2 separate pieces of work and making them in to one image. I'd never tried this before and it actually worked out well, the 2 images solo didn't fill the page, so the 2 put together made the picture complete.

I guess today's lesson is to push back when your body wants to rebel, its not a bad thing to challenge whatever is going on inside you, just as long as your sensible obviously.

Carpe Diem!

Wendy x

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