For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.
Showing posts with label Awareness. Show all posts
Showing posts with label Awareness. Show all posts

Sunday, 13 February 2011

A Month Later...

Its been a month now since our beautiful Alphonse passed away so suddenly. He really was such a sweet little creature and we do miss him, horribly. I think it was so sudden that we lost him and the fact he was little more than the guinea pig equivalent of a teenager just made the whole thing seem just that little bit sadder. I still sometimes look over at the cage and expect to have this black and white face looking back at me, then start wheeking happily for more food. Unfortunately we don't see him, but we do see our precious pups.

So I guess on the other side of it, it has been a month since we got Hope and Gizmo. Hope is about 7 weeks old now and is as boisterous as ever. He sat with me the other day and just cuddled up, then started making these sweet high pitched noises as he ran over and just sat on me. Everytime I move, he follows me like a lost puppy. It is safe to say, I have been adopted by this little one as Mum. I don't mind as he is such a little tinker! He keeps me on my toes.

Gizmo, who is 10 weeks old, is settling down a lot better now as well. When we first got them both, Gizmo was very skittish and would kick and squeal if you went to pick him up. Steve has done a great job with him and has trained him to be more social, I think they are very taken to each other and obviously, Gizmo is getting more used to me as well which obviously is a good thing.

As for me, well I am starting to settle down in myself a bit now. Admittedly, my chest has had other ideas and I spent last night in the hospital which wasn't fun, but at least I am now on something to try and clear my chest a bit. If this doesn't work then I will go back to Dr Pike and see what he says. What really took my doctor by surprise (the very lovely Flight Lieutenant, an RAF doctor, VERY yummy!!) was the fact that I was left to become clinically exhausted all because I had 2 of the most incompetent paramedics, who are probably good with the more obvious, but a silent chested asthmatic wasn't one of those things they knew. Luckily this seems to be a dying breed in paramedics, but you do admittedly get the odd one or 2 who are frankly clueless.

I was given more nebs, steroids, painkillers and antibiotics and, funnily enough, I began to make a recovery quick enough to be allowed home, some 4 hours later.

Loves
Wendy xx

Saturday, 13 November 2010

Interview with an asthmatic...

In living with Asthma to the extent that I do, I often get asked many questions. Even though I have already posted today, I just fancied answering some of those questions that people ask me:

1. What is the difference between an asthma attack and a panic attack?

This is a common question. During an asthma attack the person who is going through it will be experiencing any combination of the following symptoms: tightness in the chest, wheezy breathing (usually it feels harder to get air out of your lungs, but this does vary), cough. Although not all these symptoms have to be present for an asthma attack. This is all caused by the airways going in to spasm and closing up.

Outwardly, a panic attack can look very similar. The person who is suffering will be hyperventilating (breathing very fast and shallow) and usually calms down on their own. The best you can do with a panic attack is to calm the person down and remove them from the subject of distress.


2. What does an asthma attack feel like?

Each asthmatic feels an attack differently so it is impossible to define it in a way that relates to everyone. For me, it starts with generally feeling tired and run down, I won't be interested in very much at all or all I will want to do is sleep, although I find it hard to get to sleep. I won't eat very much nor will I really get up and move around much. It feels like someone who is sitting on me and I won't be myself at all. After this, I develop a chesty, rattling cough and become wheezy. It is here that I start treating my attack and hope for the best. This can and often does progress and deteriorate very quickly.

3. How do you know when to use your medication or call for an ambulance?

I have been told many times by my doctors to go by my instincts and let my symptoms be my guide. I know to reach for the inhaler when my symptoms start, and I will use up to 10 puffs of that if needed to calm things down. If that doesn't help, then I move to my nebulisers. I will have 1 of each nebule to begin with and another of salbutamol (Ventolin) on it's own afterward if the first didn't do the trick. If this hasn't worked as it should have, this doesn't happen often now but it used to be a regular thing, then Steve or whoever is with me will dial 999 and get an ambulance to me. This will usually result in either time on wards or the A & E department where I will be given nebulisers, steroids (either pills or IV) and oxygen to stablise my breathing and get me back to normal. Once I have been discharged, I will usually have extra steroids for a week and antibiotics because I usually have an infection.

4. How do you feel after an asthma attack?

In short, exhausted, sore and I will just curl up and go to sleep. It can take up to a week for me to recover, even longer if that recovery time has been interrupted by further asthma attacks. An asthma attack is a very tiring thing.

5. What do I do if I suspect someone is suffering from an asthma attack?

My first advice would be DO NOT PANIC. If they can speak ask them if they have their medication and help them take it as instructed or by the Asthma UK Guidelines. Click here to find these. If the inhalers don't help or YOU ARE IN DOUBT, call for help STRAIGHT AWAY. Remember asthma attacks can be fatal, so PLEASE be sensible about it and take it seriously.

That's it for the questions, but if you do have more don't be afraid to email them to me at w_bostock@hotmail.co.uk, I may not be able to answer them all, but I promise to do my best to answer as many as I can, also I really would recommend a look through the Asthma UK website and find out as much information as you can.

Much Love

Wendy x

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