For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.
Showing posts with label home. Show all posts
Showing posts with label home. Show all posts

Friday, 4 February 2011

URG!

I think I ought to get myself laminated. You know so nothing ever sticks to me and all the germs would wipe away, rather than manifest themselves in to my system and making me feel like death warmed over. All I did was go to a supermarket!!

Yesterday I had been somewhat unsettled, rattling from one thing to the next and not really taking a lot of time out to relax. Thing is, I have been very uneasy and in a lot of pain. My lungs were a bit grumpy and just don't seem to want to leave me to it just yet. So maybe rushing around and having a mad dash with the vacuum cleaner wasn't one of my better moves, but at the end of the day, it needed doing and these things really don't do themselves.

Today I just want to get some rest and maybe game for a bit. I have a game I was hunting all over for coming my way in the post now so I am happy about that. As well as the fact my skinny jeans slid on this morning without me having to undo them, not bad for jeans that 6 months ago, were 2 inches from making the button meet! That in itself is something of a small accomplishment isn't it? I also can get my old camo blazer back on, OK not quite at closure yet, but I can now wear it, so theres a start. I wouldn't mind, but the damage and stretching to my skin thanks to Pred means that I will always have loose, sagging skin around my stomach and boobs, but then again, maybe one day, I may go for a tummy tuck! If that can be afforded that is!

Last night, I was surprised by a call from Stacey. Bless her, she was really worried as I hadn't been online or texting much for well over 2 weeks. Truth be told, I just hadn't felt up to much and had spent the most part of that time either asleep or blogging. I go online and all of a sudden, my MSN was going mad with people wanting to catch up. Maybe what I want to say here is, if I am not online, its not that I don't want to talk, its probably more of a case that I just want to sleep or have been playing with my darling little pups!

The pups are really starting to show their little personalities. Hope is a sweet little thing who likes to get in to all kinds of mischief. I can't move from one end to another without him wheeking at me (or trying to wheek anyway, but he is so tiny and cute that it sounds like he inhaled helium!), he followed me around the bed yesterday, before settling on my belly and falling asleep. Very cute! Gizmo is a right little baby bull! Knows exactly where he wants to be and will he stop until he gets there? Will he heck! Just lately he has taken to gnawing the bars of the cage, hopefully something he will grow out of! Hope, however has a more... pressing matter. He is still humping like mad at the moment, but I think soon he will get the picture and stop it. Alphonse used to hump like there was no tomorrow, and then he grew out of it at the age of 8 months.

Loves
Wendy xx

Tuesday, 1 February 2011

So much like hard work...

Even when I wake up and my back is so painfully stiff and my chest is unhappy, I still try my hardest to get some odd-jobs around the place done. In less than an hour, I managed to clean the kitchen, store room AND the main room of the flat. Vacuuming, bleaching and anti-bacterial spraying the sinks and actually putting things away, rather than leaving them strewn around the small store room. It is an annoying habit of both of ours to just drop everything in to the store room and leave it there. Instead of putting things back in the correct places.

Now I admit that at times, I can be very untidy and disorganised. I will be the first to admit this folly of mine and I know it is something that I can and will work on as time goes by. One thing that really did annoy me though was in the kitchen, the windowsill hadn't been done in months and was so dirty and dusty that when I washed it down, as well as the objects that take residence on there, the water was a lovely shade of greasy brown. Yuck! I managed to clean this up and spray it with some antibacterial spray to kill off any nasties that had decided to take residence there. I was impressed really with the result of my work.

Before I did the kitchen and store room, I did do the main room of the flat. I spent most of yesterday dusting the sides down and the models, so all that was needed here was a good hoover and that would be done and dusted. So to speak. Admittedly this would have been WAY easier, had the hose of the vacuum cleaner not split, so I ended up having to glue that back in to place... Not as easy as that sounds, but do-able and the cleaner is as good as new!

No one could ever accuse me of not doing my fair share of the work around here, and my lungs had a strop to prove it to all of us that not only do I work hard enough around here, but it really is a drain on me at the moment, with my energy being as low as it is. I think I have proven my point though. I do work harder than most around here. In a while, I will be working out what needs to go out of our payment tomorrow morning and draft up a shopping list...

Fun huh? Well this is the demands of running my own household and dealing with my problems, as well as what "problems" Steve has as well.

Loves
Wendy xx

Thursday, 27 January 2011

Escape from the Alex...

Sounds like it should be an action flick doesn't it? Sadly it ended up looking more like an episode of Casualty without the blood and guts. OK so there was a little blood, but that was just from my IV line when it exploded then shut down. When an IV explodes, there is a sudden gush of blood, and usually I bleed through gauze after gauze. This time, the vein shut down and collapsed at the same time, so luckily there wasn't much blood, but my wrist is swollen and sore... Bad times...

I was there because my chest refused to play nice. It was so weird, I was a little off colour and tired, but I never expected such an attack. After 2 nebs at home, plus the hourlys I'd done all day, it soon became very obvious, I was not going to get any better. So Steve did the responsible thing and called 999 and got me an ambulance. I was whisked away, Oxygen driven neb on the go, to the hospital. Where I was given about 3 more nebs and some steroids. As well as more oxygen. I was really not improving and the doctor was running out of options. So we opted to try something that we had never done before. An infusion of 2g Magnesium and 250ml of 0.9% Saline solution direct in to the vein.

What amazed me was within an hour I was starting to really feel better. By 3 AM I was almost back to normal, however, I did start wheezing again when the doctor, funnily enough an old consultant who didn't believe in asthma, go figure, came to see me. We had a good banter and a laugh and he said I had looked a lot better and certainly sounded a lot better previously. I was given Prednisolone, Clarithromycin (antibiotic) and other medicines. I am now on rest orders, whether I like it or not, and I have to take it or I will have to spend more time back in hospital. As lovely as the staff are, I really can't afford to go back there for any period of time.

Thanks to everyone for the get well wishes. I will be back on my feet again soon :)

Loves
Wendy xx

Labels

ABG (2) acceptance (5) Adventures (1) Alphonse (2) Ambulances (5) Amusement (1) Angry (3) Animals (2) Another Day In Midgar (2) Appointment (1) Art (4) Asthma (22) Asthma Attack (12) Asthma UK (2) Awareness (2) Bad Attitudes (1) Bass (1) Benefits (3) Birthdays (3) Blogs (2) Blood Pressure (1) Books (1) Bucket List (1) Busy Day (2) Calming (1) Catherine (2) Childhood (2) Chocobo (1) Christmas (4) Cleaning (2) Close Calls (1) cold (1) Comforter (1) Compensation (2) Creativity (1) Cruelty (1) Custody (1) Cute (1) death (3) Debt (2) Depression (4) Design (1) diary (1) Disability (1) Disgust (1) Disney (1) Distraction (2) Doctors (4) documentary (1) Dr Pike (1) Dreams (1) Drugs (1) DWP (1) Dye (1) Eating Patterns (1) ESA (1) Exhaustion (3) fair share (1) family (1) Films (1) Final Fantasy 7 (5) Flu (2) Fluid (1) Food (1) Friends (7) Gaming (2) Gizmo (2) glass half full (3) goodbye (1) GP (5) guidelines (1) Guiniea Pigs (6) Guitar (1) Hair (1) happiness (6) haters (1) Help (1) HND (2) home (3) home use (1) Honesty (3) Hope (4) Hospitals (8) Housework (1) Human Nature (1) Illness (5) Infection (5) inspiration (1) Instincts (1) Joke (1) JP (2) Judy (1) Labas (1) Life (2) lost cause (1) love (1) Luke (1) Lungs (3) Lush (1) Me (2) Medication (7) Memories (1) Mike (1) Mind (1) MSN (1) Music (6) My Past (1) Nathaniel (1) Nebuliser (8) Needles (1) neglect (2) Neighbor (2) new look (2) New year (1) NHS (2) Noise (5) Omen Shadow (2) One day's supply (1) Organ Donation (1) Pain (3) Patch (1) PDSA (1) Poem (1) Positivity (1) Pred (3) quotes (1) Rachael Wakefield (1) Rachy (1) Random ideas (1) Rant (1) Recovery (7) reinvention (2) Reporting (1) Routines (1) sad (1) salmonella (1) scared (1) Sean (1) Selfishness (1) Sephiroth (4) Sephy (3) Simon's Cat (1) Sims 2 (1) Sleep (6) Sorting it Out (1) Spite (1) Steve (1) Store Room (1) success (1) Support (2) Survival (4) Tattoos (1) tears (1) Technology (1) Temparature (1) Thank You (4) The Crow (1) Therapy (1) Thoughts (1) Thrash (1) Tired (1) Toys (1) Transformers (1) Transplant (1) Veins (1) Vomiting (1) warnings (1) West Midlands Ambulance Service (2) winter (1) work (1) Year (1)