For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 8 March 2019

Journals.

I was having a look through some boxes the other day. It's amazing how much stuff you end up with when you aren't paying attention. For me it seems to be a thing for notebooks. I have a lot of them. And this weird habit of offloading a few thoughts and feelings before moving on and writing something else in another book. It's something I've always done. I used to buy notebooks at school, fill them with randomness and then get another one. It's kind of like journalling but it's as sporadic and patchy as my mind tends to be.

Some of my notes make sense. Budgets and shopping lists, "to do (often dated)" lists and things I need to get for the house. Its by looking at these that give you a vague insight in to how Jace and I run our place and how I keep an eye on things to make sure bills are paid. Then there's doodles, characters points (for my Midgar stories and some other projects) and general just writing down whatever pops in my head (these are usually random rants about things or things I've had to bite my tongue before saying). Maybe it's just my way of making sense of the chaos. Other times it's to alleviate boredom or stress. Other times I write what I think just so that at some stage, I'll be in a calmer mindset to cope with the way I feel about things. Distance and all that.

One thing I did find was from 2012. When my body was starting to get too weak to cope with moving around and I was facing the prospect of being in a wheelchair. This didn't happen totally for 2 years after this but my mobility was getting worse. It's hard to read because the "me" who was writing it seemed so sad. She didn't want to be in a chair because she was scared that it would take her independence away. How I wish I could go back and comfort her and tell her that actually the chair wouldn't limit her, it would liberate her. And it really has. In fact, my nebulisers and oxygen have both freed me from nearly weekly admissions. My life has been so much better with them and as hard as they have been to get used to, it's been a positive thing. 

I do sometimes wonder what my life could have been like but then it hits me, it doesn't matter so much now because this is what my life turned out to be. I don't feel so sad about it anymore, there's times where it feels unfair but it's then when you sit and remind yourself that you are still alive and you are still doing things, even when you can't see that for yourself. I think it is very much a case of what you make it and really the best thing to do is to just move forward, even if its only baby steps to start off with. When I read my old journals it makes me remember that yes things were difficult then but things are never easy when they're worthwhile, but the main thing is that I somehow managed to survive and live to fight another day. Maybe that's what it is. The knowing that you can overcome things and move forward, even if it isn't easy. But show me something in life that was easy that was worth it. No struggle, no way forward. 

Simple. 


Loves
Wendy xx

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