For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 28 October 2011

From the Ashes...

Have you ever had one of those days where everything reminds you of how precious life is. I woke up on Wednesday just itching to just start the day and embrace it. The weather was less wet than it had been in a while, heck even my asthma was behaving a little better than usual. I went out with Tom and had fun walking around, and some things I brought were focused on making me look as good as possible. For so long I hadn't even bothered to brush out my hair or get dressed and it was not a good place to be.

I then heard some tragic news and it shook me. Rachael Wakefield, a 23 year old girl from Manchester lost her fight for her life with a rare and devastating lung disease. Rachael insipired so many people to sign the organ donor register as well as became the voice of many others who struggled to get on the transplant list. Her strength and courage throughout her long illness goes to remind other people with illnesses and disabilities that it doesn't mean the end and that you can still do something positive. Rachael was the person who told me to keep pushing to get a proper diagnosis as well as inviting me in to a group of people who were in a similar situation with lung problems. She is now at peace and even though we are all sad that we had to say goodbye, we know she will always be with us in spirit and in each one of us as we fight to achieve our goals.

Young people with illness should embrace life, we are not just a load of statistics or symptoms, we are strong and inspiring people in ourselves and by not embracing life and taking it by the horns, it is an insult to all those people who lost their lives. I honestly believe that.

Loves
Wendy xx

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