My Journey... every step of the way.: Learning To Live...

For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Thursday, 4 August 2011

Learning To Live...

Over the last week or so, a lot of things have reminded me of the incredible thing that I have come to know. I live. Not just exist. Its been a heck of a journey over this year, and so much has changed, improved and some things that even got worse before they got better, but over all its been interesting so far and there is still a heck of a way to go until I get to the end of the journey.

My mind skips back to just 12 months ago. I was at the stage where I only went out when I had to. At the time I was at some New Deal course with the Job Centre, that was a piece of crap to say the least, I mean 2 days a week sitting in this stuffy room with no ventilation, barely able to breathe and not allowed to use my neb without asking health and safety if it was OK, and then having to walk to Sainsburys so I was "Off Site". Then I was getting home to a household where I was no more a part of it than the paper on the walls. I hated it at the YMCA and wanted to leave all the time. I mean it really was the right set for the macabre play that was my relationship at that time. But I really stand by it when I say that I needed to have that dip in my life to really enjoy the wonders that have been coming.

Tom and I are very happy together, sharing in each others dreams and hopes. We just work well together and well, we are really happy. Even if we do spend the afternoon just watching TV or gaming, we are just happy to be with each other and thats what a really what a relationship should be about, a couple who enjoy just being WITH each other rather than having to do fantastic and crazy things just to have something to talk about. I love that about being with Tom, we can just sit and cuddle and thats just what we do. He respects me and loves me unconditionally and I love him for every wonderous thing about him and I really love being with him and just doing what we do.

When you find someone like that, you really do have to take the bull by the horns. Take this amazing love, make it real and then cherish it. Love seldom comes around more than once in a lifetime, so when you find that real and pure thing you have to hold it precious to your heart. And the friends you cherish, hold them close and never let them go.

Loves
Wendy xx

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So, what is this blog?

This is a blog about my life and what I do. Sometimes its witty and others it can be quite serious, but I feel that sometimes the steps you take in life are the building blocks for the future. I try and at least keep a positive outlook on things because sometimes that can be enough to get you through. So, come and delve in to this crazy, spontaneous and sometimes scary world of mine.

Named as one of Healthline's best Asthma blogs of 2013, 2014, 2015 AND 2016.