For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Thursday 23 December 2010

Gig Tonight!

I am really looking forward to tonight, Omen Shadow are playing and it is going to be so much FUN! Am I nervous? Maybe a little, but I know it will pay off and will be a good night. As for today, I am pampering, and indulging myself so that when I go on stage, laced in and looking amazing, the lights start and the crowd get jumping, I can really adopt my own stage persona. Stage Wendy is fearless, energetic and most of all passionate.

So far my pink hair has gone down a treat and people have been really receptive to it. I think sometimes by changing something that at first seems small or trivial, you can really wash over with a new lease of life and I think thats what I was going for. I was getting sick of the frumpy and depressed look and wanted to show people what I look like, and I think I finally achieved it, I found ME again.

These last couple of days, I have been feeling a bit crap due to this and that, mainly I was getting frustrated that things were a bit pants really when it came to my chest. I am so desperate to go back to working and living what was a normal life for me and I think because of that, I forgot what was really important, accepting what is real now, and leaving my fantasy world where every illness has a cure and everything works out perfect for everyone. I was being idealistic and taking hope just that little bit too far and then getting depressed and miserable when things didn't work out that way, even though, I should have known really that it wouldn't. There is a difference in accepting your lot and being a defeatist, and I know that now.

So this morning, I woke up, took my peak flow and had a neb. I didn't feel like I had failed or like I was weak and pitiful. I saw myself as a strong and confident young lady who, yes goes through a lot, but goes forward and does what she needs to.

I also want to wish a friend of mine a rapid recovery and hope she gets free of the hospital in time for Christmas.

Loves
Wendy x

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