For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 6 February 2012

On Blogging...

I am so proud of the following my blog has had and the reaction of people who read regularly (or even some people who are new to my site). Its nice that my ramblings and thoughts really reach other people and for those who think I'm amazing or inspirational, it is the other way around. It is because of you, the people reading my blogs that I keep going and I keep on with the cathartic process. Blogging really has been that to me. It has been a place to put down my thoughts, who or what has been bugging me or even a way of talking that can make me feel better as it isn't playing on my mind constantly.

I live with my disorders every day and I understand them to a level that only few others can. Because of the amount that is known academically about Brittle Asthma and the fact that it only affects a number of people, its not a term many people have heard and its not a condition that many people understand. Heck, I live with it and there are days I just don't get what it's playing at. Some days its so hard to put in to words what I feel and why I feel that way. Some days I can write paragraphs about things.

With the combination of conditions that effect my physical and mental wellbeing, the feeling of struggling can become overwhelming. Those are the days when I just want to lie in bed all day, or cry because I feel a bit miserable, but there are other days when I just want to do as much as I can (albeit some days that isn't much but when I do things I do feel a sense of pride in myself) and I keep trying and trying to have the most normal life possible. Although this isn't always possible. Since having carers, things have been so much easier and I'm not pushing myself to the extremes and making myself unwell just by doing standard household chores.

I don't have millions of thoughts and dreams for the future. To be honest, I often find myself planning no further than a few days at a time. Live each day as it comes because yes I know it could be the last time, but you know something, if that happens then that happens. I would at least like to have gone out with no regrets, no time wasted on stupid grudges, if I don't like someone, I don't have them around, simple as that.

Loves
Wendy xx

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