For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 10 January 2012

Loose Ends...

Today has been a day of tying up all those loose ends that have, as of late been working on my last nerve and strand of sanity. It's mainly been things like paying bills and other things, but they're things that really annoy me. The main annoyance is how far behind I had gotten on things because of one reason or another, to be quite frank, I really don't care about the specifics anymore. Wallowing in the past and trying to work out who did what and why is really not profitable to anyone so instead of that, I want to just focus instead on putting the wrong things right and learning from the past. Learn from our mistakes and make the choice to go forward and make sure that the same traps aren't fallen in to again.

That is my biggest priority now. Getting back in to the black from what was quite substantial debt because of life in the YMCA, barely making ends meet and having to sell things just to get by. It's not something I EVER EVER want to go back to and I don't intend on falling in to the same traps over and over again. I have a future to plan and a life that I have worked my ass off to get back to. My support worker really helped me to turn my life around after everything that the last 2-3 years had taught me. I will admit freely that I often let myself get caged and that began to affect me in profound ways. My support worker really helped me turn it all around. I mean majorly.

I've been adapting to life with this condition and I really feel confident in myself again. I've been looking after myself and eating better. I've been enjoying evenings where I can just lie in bed with a DVD on, my PSP running and a pot of tea at my side. Heck even my asthma is a bit better these days, (bar a few hic-ups but I have been handling well) and my confidence is growing. I finally managed to do an emotive portrait on asthma and how it makes me feel, how it affects me and the dark rings around the eyes are symbolic of how exhaustion is a major part of my life. My Lung Function is about 60% and there are days when I don't feel like getting out of bed, let alone running around after others. You can see and even feel the fear in my eyes. The pain of what a bad day can leave me with. I love how it came out. It took a few attempts to get it right.

Loves
Wendy xx

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