For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Sunday, 8 May 2011

First Hospital Run in The New Place...

Well it had been about 6 weeks or something daft like that (last one was 16/3 so it was nearly 2 months or something like that), either way, I had my first Hospital Run in a while and the first ever time for the new place and the new piggy saw his first paramedics. It makes me wonder, why is it when I have not had one for ages, everyone is really nice, yet when its happening every week (it has been that bad over the winter and before the Phyllocontin was introduced) you get the really mean paramedics or the nurses who could care less about what they're doing, but they would have to be sedated.

Aside from complacancy about pain relief (I understand there was an RTA, but even the doctor was annoyed that I was left in so much pain and still struggling for 3 hours, I actually thought I had beat this thing but I wasn't out of the woods by any means), the doctor really worked at making me well, comfortable and less stressed from pain and fear (I was scared that they would never get around to seeing me) and then I was allowed home to go and rest and recoup. This attack was so fierce that it took 40mg pred, 8 nebs (most of which were on oxygen), supplementary oxygen for at least an hour or 2, and painkillers to make everything a bit more comfortable. When the first paramedic arrived, my SPo2 was 80%, at first we wondered if it was my pulse oximeter but theirs said exactly the same thing. As for investments, I think my little device is a good one. Luckily the paramedics managed to make me stable enough to go in.

Today, I just feel groggy and tired, got a cough so need to get my chest comfortable, keep peak flow up past 200, SATs over 90% and if not its back in I go. And I really don't fancy it, even if the Lifeline people were fantastic, even calling up this morning to check I was OK, I was sleeping so Steve managed the call and I crawled out about 11 ish.

Loves
Wendy xx

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