My Journey... every step of the way.: Getting the help...

For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Monday, 7 March 2011

Getting the help...

As I got sick with this, one thing no one ever really told me about was getting the help I needed for the things I would love to do, but on my worst days, just cannot do it. Things as simple as just getting up and changing from my PJs to normal clothes (this can and has left me somewhat puffed out), making something to eat or drink or even being able to reach my meds. I never realised how much of a struggle it can be when my asthma just can't or won't play ball. Today was one of my wheezier days, even playing with my boys left me absolutely shattered, sadly we still have to keep separating Hope from the others as he is just too frisky.

In myself, I have been a bit lethargic and was sleeping a lot again, I spent some time after cleaning with Steve, fast asleep again, until my friend Rich came round to see us. Rich is so much happier these days and its nice to see him back to his old self. So I didn't mind being woken, although it was noticed that my clothes were looser and I only brought these PJs last week!!

We also had an assessment from a social worker for my social care. Not too sure what to expect in the coming months, but it could result in some major improvements in my life and how I live. I guess that is all I have to say right now, am very tired and its been a weirdly long day... even though I haven't actually done anything...

Oh and a big THANK YOU to Tom who came to see me yesterday xxxxxx

Loves
Wendy xx

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So, what is this blog?

This is a blog about my life and what I do. Sometimes its witty and others it can be quite serious, but I feel that sometimes the steps you take in life are the building blocks for the future. I try and at least keep a positive outlook on things because sometimes that can be enough to get you through. So, come and delve in to this crazy, spontaneous and sometimes scary world of mine.

Named as one of Healthline's best Asthma blogs of 2013, 2014, 2015 AND 2016.