For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Saturday, 30 October 2010

Another lazy Saturday...

Its something I have a lot of, 'Lazy Saturday's'. Days where nothing is really going on, and it's so quiet you can hear a pin-drop. I spent it pottering around and with Steve, cleaned the flat and it made me happier because when my emotional space and home felt crowded and chaotic. I get a little panicky because it just feels horrible and scary when your room is a mess.

I then settled in to doing some MSN chat with some friends and checking over my email and what have you. Not the most exciting thing you can do in a day, but it just feels awesomely amazing to be back in touch with my friends again, I really didn't think I'd miss them THIS much.

Just as I was getting in to that frame of mind, my friend Ant called, he popped round and we had a good time, I showed him some of my works and he showed me some of his music, he writes some beautiful instrumentals on his keyboard, it makes me jealous at times, I must say.

As for me, I have had a horrible wheezy cough since Thursday and its bugging me. Took a peak flow and it was 210 l/min. For me, it should be 430 l/min so you can see that for me this is a cause for concern, so here I was wondering what to do, powering through inhalers, nebs and raising my pred again to 20mg, until Monday at least, or until I feel well enough to reduce back down. I'll see the doctor later, unless of course it settles down or goes away by itself... yeah OK that was dumb!

Somebody once asked me about my medication consumption so I decided to show just how much I use. Hope you find it interesting when I can finally post it!

Love ya muchly!

Wendy

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