For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Tuesday, 22 June 2021

Hope and Home

Last month, I'll have been on home oxygen for 7 years. I wasn't even aware then how much it would change my life, for the better or how much I was struggling before it was prescribed. Before it was given to me, I was so tired, so out of it and spent most of my time sleeping. I wasn't really able to do a lot and to be honest it was like I was just fading slowly and that was it. When I started with oxygen and when we did tests to find out why I was struggling, the doctors then said it didn't look good for me and we just didn't know what was going to happen.

I kind of drifted for a bit. I'd just get up and go and wander around blindly, didn't really want to do anything or talk to anyone.

It's fair to say that I've definitely beaten the odds there and I'm still carrying on with life. Being told that there may not be much more we could do and even having some doctors even telling me that I wouldn't be around too long (quite wrongly, if I do say so myself) meant that I had been forced to face my own mortality and decide to defy anyone who said that I can't. I don't fear it, I've made my peace with certain eventualities but at the same time, it's made me more determined to keep going and keep making my own decisions and choices. 

When I moved from my old flat, I vowed to make changes to how I lived. Stopping myself from destructive habits and cutting energy drinks out. I still remember when I moved here. After 5 years in Abbeydale, the main thing that hit me was just how quiet it was. Being able to hear my own thoughts for the first time in months and looking out at the stars, thinking how bright they were. I've been here for nearly 6 years. Which means that after Cull Avenue, this is the longest I've ever stayed in a place. Probably the first real "home" I've made for myself (aside from family homes), Jace and our guinea pigs. 

I do have fond memories of the other places I've lived in, even the YMCA, but now that I think about it, the HMO (house of multiple occupancy) or flat life never really suited me. While it's nice to have a door you can lock behind you, I think that life in our bungalow has been better for our needs, having a real kitchen helps too. 

I'm just hoping that the whole pandemic situation improves. I want to believe that eventually things will get better. I want to hope that we can get some kind of normality and we can start doing things again.

Guess there's a reason I've got my "hope" tattoo isn't there?

Til all are one
Wendy xx

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