For life's little ups and downs.

A rather quirky, funny and sometimes daunting look in to the life of someone who has a lot of health problems but does their best to keep positive. Punctuated by guinea pigs, anime, superheroes, transforming robots and cross stitching.

I started this blog to tell my story, about who I am and what I do. On top of the health problems and raising awareness for those, I also use my blog as a way to help promote other causes, particularly ones which affect the most vulnerable. I live with a number of different and complex health problems but I refuse to let anything get me down. I know how it feels to be discriminated against or thrown aside. This is me. This is my life. I live it and do what I want with it. Nature sets the limitations. We set the boundaries.

About Me:

A blog about life. I live with Type 1 Brittle Asthma, Bi-Polar Disorder, Obsessive Compulsive Disorder as well as Various Allergies, Neutropenia, Crohns Disease (my IBS was rediagnosed as Crohns), Osteo and Rheumatoid Arthritis, PCOS and Osteoporosis and Heredetary Spastic Paraplegia. I have recently also been diagnosed with Sleep Apnea (which makes me stop breathing in my sleep) I live with these conditions, but I refuse to let them keep me down and out. I still try and make the most of my days despite being so poorly and having to rely on my wheelchair, nebulisers, nearly 50 pills a day and 2l/min of oxygen and CPAP.

I'll flap my broken wings and erase it all someday... You'll see.

Friday, 29 January 2021

So, 2021?

I won't lie, 2020 was a heck of a shitshow (I don't like to swear but this year...it's been rough). The whole Covid-19 saga was mismanaged and so much more difficult than it needed to be. I won't go in to my whole views on this, to be honest it would've been simpler to say that if the government had listened to experts, not their bank balances (or the orange American Idiot) then maybe we wouldn't even have had a second wave, and if they'd learned lessons maybe the virus wouldn't have mutated. Last year we were so close and then everything went to hell around September. It's frustrating as we nearly beat it and were so close. Too many people have died as a result and it's been galling to see people not following the rules to keep everyone safe. I get that we're all frustrated and want some normality but when you see your local rates skyrocket you just have to wonder, do people even want it to end?

Here we go, Lockdown 3. It's a couple of weeks in and I'm just finding myself getting more and more unsettled and sick of this now. I've not been allowed out for months as I've had to shield, I'm missing my friends, family and the freedom to just go outside, ride around and do simple things like shopping or meeting up with people. It's knowing that it's the right thing to do that keeps me going. After all, my family has already had a tragic loss from the virus, they shouldn't have to have another. Nan wouldn't want me taking risks either. It's still kind of raw. When someone you love dies, it's like something has been forcibly torn from you. I've never really gone through this before, it's still kind of like a horrible nightmare and there are times when I think about it all and feel a surge of sadness and just wanting to go back to those old days where I would follow Nan like a shadow. But the door closed on those days and now I feel like all I can do is watch through the window. 

I've been so quiet recently because I'm still going through the grief process. I usually end the year with a post summing everything up but I'm struggling to find the right words to say. I'm still hurting, I miss her so much, even harder that I couldn't see her for too long due to my illnesses. When you have a number of illnesses it's hard to balance them properly. Sometimes you just can't. I have to plan everything, carrying oxygen and meds. I wanted so much to be at the funeral. It hurt that I couldn't go but I know my words were there. Christmas Day I had a doorstep visit from my mum and she gave me something very special, a locket with some of Nan's ashes, yesterday a keychain with her handprint engraved on arrived. It gives me comfort to have them, like she's here with me. I keep her under my pillow so she's there while I sleep.

I think it goes without saying that my mental health hasn't exactly been too good recently. I'm struggling with the limitations and changes my body has. I struggle with the fact that even getting up and transferring to my chair can be tough. My back recently has been bothering me, it's difficult to explain what happens but sometimes I get spasms that start at my neck and run through to my hips. The thing with Spastic Paraplegia is that I can't comfortably have my legs straight. This has been an issue ever since I could remember (kind of hard to forget when your Mum had to forcibly stretch your legs out several times a day, ouch!) and as a result, if I sleep with my legs straight for long periods, well you can imagine it. It's rather rough. My asthma is flaring too so I'm finding things a bit tiring right now, thankful though for Animal Crossing as it's been a welcome distraction and it's been good to kind of get out of my own head for a bit, even if it's just an avatar running around a make-believe island. 

Last year, I had an infection and it lasted for months, I'm just hoping that this isn't going to try the same trick. 

Til all are one
Wendy xx

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